|S U M M A
Researchers believe most
deaths are preventable because a misdiagnosis often means more abuse
which is more likely to be fatal.
of the American Medical Association
you know that April is
National Child Abuse
Prevention Month? Spread the word!
Stop Child Abuse
|Healthy & Wise
most concussions symptoms appear to resolve within a few months, research
has shown, that when such patients are subjected to the stresses, of everyday
living they perform well below that of uninjured persons.
achievers may achieve normal scores, but not in a normal fashion.
Normal subjects do not need
two hours of sleep after the test session to
fully recover from the effort,
nor do they need to take two to three days to recover fully."
Gronwall, Dorothy in Levin, Eisenberg, Benton. Mild Head Injury,
Ch. 10, pages 156-161. Oxford University Press, 1989.
of The American Medical Association - JAMA
TBI Action Alert
BIA-Policy Corner -
June 19, 2000 -- Still we await introduction of the TBI Act in the
Senate and the hectic process that will follow. We need to keep doing the
same thing over and over until this Act becomes reality. We have every
reason to believe that it will absolutely achieve passage this year, so
keep up the pressure!!! Here's what's going on this week.
TBI Act -- Action Alert Still
in Effect !!!!!
Focus on the Senate --
We expect Chief Sponsors, Senators Hatch (R-UT), Kennedy (D-MA) and Frist
(R-TN), to finish their draft of the new bill and introduce it soon. Please
make those Senatorial contacts and remind them that the following are extremely
The Toll Free Help line requested for the Centers for Disease Control and
Prevention (CDC). The provision of Protection and Advocacy Services
for people with TBI
ACTION: Call, write
or fax your Senators asking them to support the Act, including the provisions
listed above. Members of the Senate Health, Education, Labor and Pensions
Committee are priority (see list at the end of this Policy Corner), but
even if your Senators are not on the Committee, they can help by contacting
committee members and urging their support for the TBI provisions.
contact: Robert Demichelis
|"The brain is like
any other organ in the body. It ages with regard to how it is used--"
Case Western Reserve
who have sustained one head injury are at risk for subsequent head injuries
because of the changes in their behavior and their judgment.
Demand Change In Long Term Care System
June 18-22, 2000.
Week of protests to advocate for a change in a "broken" long term
care system. 800 members of ADAPT,
a national grassroots disability rights group, and numerous other groups
representing people with disabilities will send a message to the Clinton
Administration to implement the U.S. Supreme Court decision in Olmstead,
which was issued last June.
A rally in Upper Senate
Park will kick off ADAPT's series of protests to demand more and better
home and community based services. They will send a message to Congress
to pass MiCASSA, the Medicaid Community Attendant Services and Supports
Act, S. 1935, introduced by Senator Tom Harkin (D-IA) and co-sponsored
by Senator Arlen Specter (R-PA).
bill allows people to choose to live and receive services in the community
rather than being forced into a nursing home or other institution.
thousand people are expected at the "Faces and Voices" rally, which
begins at 2 pm on Sunday, June 18, in Upper Senate Park on the Capitol
Grounds. A march will follow the rally, and kick off the protests planned
for the week.
ADAPT also charges
both presidential candidates with ignoring the issue of Medicaid long term
care reform in their campaigns, angering the disability community. "We
are the faces and voices of a failed public policy," said Bob Kafka,
national organizer for ADAPT.
criminal that in the year 2000
people are still being forced
into nursing homes. We are fed up with the rhetoric. It is time for Congress,
the Clinton Administration, and the presidential candidates to take a position
on MiCASSA." http://www.adapt.org
York Times ran a big
spread on Concussion in Sports on
Friday, May 12, 2000.
View the article, related links and express your views in a forum.
|Brain in the News
Finds Even 'Mild' Injuries to Brain can have Serious Effects
Even mild head injuries
result in major changes to the brain's metabolism and could make victims
susceptible to more serious damages from repeated blow; according to a
study published in the Journal
of Neurotrauma, vol 17, no 5, May 2000 -
walk boosts brain power among the old, study finds
A new study suggests that
taking an invigorating walk gives older people's brains a good workout,
boosting memory and sharpening judgment.
show that stem cells can be used to repair nerve tissue
Master cells taken from
mouse embryos were used to repair spinal and brain cells in rats in what
researchers say is a step toward treating nerve disorders, such as multiple
sclerosis, by growing new tissue. (July 30, 1999)
Damage can Develop for weeks after initial trauma
Brain damage after an accident
or trauma develops slowly, sometimes over weeks. "A brain-injured
patient may look stable, but cells are still dying, said Tracy McIntosh,
professor of neurosurgery at the U. of Pennsylvania Medical Center. Even
after two months, brain cells in the thalamus, the area of the brain responsible
for motor function, were dying.
Journal of Neuroscience,
August 1, 1998
Rights Activist Susan Sygall Named MacArthur Fellow
EUGENE -- The John D. and
Catherine T. MacArthur Foundation has named Susan Sygall, Executive Director
of Mobility International USA, as one of this year's 25 MacArthur Fellows.
She will receive $500,000 over five years . Sygall is perhaps the first
woman with a
disability to receive this
American Assoc of People with Disabilities Presents...
of ADA Campaign marks the 10th anniversary of the Americans with Disabilities
Act (ADA) and the 25th anniversary of the Individuals with Disabilities
Education Act (IDEA), and a call for individuals, communities, and leaders
to renew their commitment to an America that works for everyone.
|Youth At Risk
Highway Traffic Safety Administration estimated that if all Americans wore
seat belts it would save 10,000 lives, 200,000 injuries and $20 billion
in costs to society on an annual basis
|Stroke Family http://www.strokefamily.organnounces
the first TALKING on-line home practice program for aphasia! Success stories,
Art Gallery, recovery guide, articles, activities and support for stroke
Transitional Learning Ctr. for TBI email@example.com
816 373-4485 ext 1277
North Country Independent Living
1267 Villege Square, PO Box 518
North Conway, NH 03860-0518
603- 356-0282 or 888-400-6245
Looking for rehabilitation opportunities with people
whom have acquired Traumatic
Brain Injury in either USA or Australia. Kevin
June 1, 2000
If you've suffered a disabling head
injury, or stroke you can inquire about a novel rehabilitation technique
that has enabled patients to regain use of a limb disabled by brain injury.
The technique, called constraint-induced
movement therapy, restores lost function by
rewiring the brain. If you've had a head injury you can
learn about the trial by calling (205) 934-7660. If you've
had a stroke, learn about the NIH-sponsored national trial by calling (205)
|...A Large Dangerous Animal...
| Brain injury transforms
persons into a non persons. It strips away memory, self reliance and dignity,
and leaves behind a mere shadow of the former self.
Personality, and characterological
changes transform the brain injury survivor into a different person,
and frequently a not very likable person.
Typically, the survivor is unaware
of his or her newly acquired deficits, and feels at a loss
to understand the reactions of others.
Perceptions, memory, thinking
ability, emotional and behavioral control may be deeply
impaired and frequently out of reach of the survivor. Essentially,
the survivor becomes estranged from his past and his family.
The experience is like that of a stranger
in a strange land where things look familiar yet different.
No longer the person he or she used to be; friends and associates fall
Frequently families find themselves
playing host to a unpredictable, dangerous stranger who bears little resemblance
to the former self.
Links with the past can be lost as
the survivor loses touch with family history and traditions.
Estranged from a lifetime of learning and personal growth the survivor
and family are cast adrift without a coherent identity, and without a coherent
plan of action.
Typically, the strain on the family
unit becomes unbearable, and families fall apart. Expectations
based on years of pre-injury goals and accomplishments are no longer
And, in many cases families lack sufficient
information and resources to create for themselves a new culture, a new
and way of being, and growing together.
his brain injury living with my husband is like living with a large dangerous
Explore these and other
issues at a: Fee
Seminar, Saturday, 05/04/02
Head Injury Hotline
|Build a Better Brain
"It's a good
idea to keep the brain and the body active to stay fit. By remaining active
and engaging in diverse mental activities, you're building more brain connections
and, in effect, building a better brain."
Dr. Steven Ferris, professor
of psychiatry and executive director of the Silverstein Aging and Dementia
Research Center at New York University School of Medicine in Manhattan.
Doctors Miss Children's Head Injuries
According to a report from Brown University School of Medicine, Physicians
overlook head injuries, caused by abuse about one third of the time.
Researchers, who studied 173 children under age 3 found that 54 of the
173 children with head trauma caused by abuse -- such as hemorrhaging,
fractures and bruises on the brain -- were not properly diagnosed.
"In some cases, the parents knew that someone had hurt the baby and they
didn't tell the doctors," says study leader Dr. Carole Jenny.
"in other cases, parents didn't have a clue. Abuse may have come
at the hands of a baby sitter, grandparent or boyfriend."
Fifteen percent of the 54 children were reinjured after the missed diagnosis,
and 22 percent of the group experienced medical problems related
to a missed diagnosis.
of the American Medical Association, February 1999
When Should a Head Injury Involve a
Trip to the Emergency Room?
Children commonly suffer great falls.
They fall off of beds, they tumble off changing tables, and they fall down
stairs. Older children fall on their heads on playing fields, fall
off bicycles, and in-line skates to name a few. Most end up with
nothing more serious than bad headache, but sometimes complications require
That leaves parents with this often perplexing question: When is
a head Injury minor and when should it involve a trip to the emergency
The first thing that a parent should do after a fall is to find out what
happened, said Dr. Mary E. Aitken, the lead author in a survey of what
physicians do when a head injury involves little or no loss of consciousness,
nor behavioral changes. This may include minor concussions.
For anything other than the most minor blow, at least call the doctor and
observe the child carefully," she said. Nausea, vomiting, dizziness,
headache, loss of consciousness, seizures, lethargy, irritability, swelling,
bruising, bleeding and memory loss may be signs of a serious problem.
Most symptoms, she said, surface within 36 hours.
of Pediatrics and Adolescent Medicine, December 1998
|Pediatric Committee Issues Warning
on Youth Soccer
"We're putting out a word of caution," said Dr.
Bernard Griesemer, who is the author of the statement for the sports medicine
committee of the American Academy Of Pediatrics. The statement sounds
the alarm "On repetitive heading of soccer balls in young athletes, the
bottom line is probably 'less is better.' "
Griesemer stressed that heading drills, in which a child's head is knocked
repeatedly, are of greater concern to the pediatricians' group than is
the occasional head-punt in the course of play.
During the three to four minutes of "heading drills" each week a child
will probably be bopped on the head 10 to 15 times by a ball tossed from
about 10 feet away. While coaches and trainers might not see
the harm; the nation's leading group of pediatricians are concerned that
the practice of repeated "heading" a soccer ball could result in
lasting brain injury.
The warning addresses youth soccer safety issues. It outlines existing
research and, said Griesemer, pending further studies restraint is warranted.
Now, as coaches roll their eyes and parents hold their breath, doctors
are focusing on soccer -- the sport embraced for their children by many
young parents as a safe alternative to football.
Pushed by enthusiastic Coaches and often prodded by gung-ho parents, more
and more children are hurling themselves into competitive sports - and
getting hurt doing it.
and moaning can be heard across the nation's playing fields as coaches
and parents brace for this latest assault on youth sports. In the
last two decades, doctors' warnings have sunk youth boxing, brought compulsory
batting helmets to little league baseball, and outfitted pee-wee hockey
players with mouth guards and eye protection.
Concerns over heading drills have been prompted largely by a pair of studies
that compared the mental functioning of large groups of adult soccer players
to adults of similar age and circumstances who did not play soccer.
One was conducted in Norway, the other in the United States, and all involved
soccer players who had begun playing - and practicing heading drills -
at a very early age.
In the Norwegian study of 106 former and still active professional soccer
players, 81 percent were found to have impairment of their attention, concentration,
memory and judgment that ranged from mild to severe. The more recent
U.S. study compared 60 young adult soccer players with a smaller group
of non players found that attention and concentration deficits were significantly
more common among those who "headed" the ball most often.
do not prove that the practice of heading is to blame, and they don't establish
how much drilling might be dangerous to the developing brains of children.
But they have appeared at a time when neuroscientists are demonstrating
that lasting brain injury can happen even when a victim does not lose consciousness
or suffer a concussion, and that the brain - like many delicate tissue
- can be harmed over time by small repeated stresses.
Another recent study reported that amateur soccer players scored lower
on tests of memory and planning than other amateur athletes did, and that
repeated blows to the head may be the reason.
While some research has implicated "heading" the ball, other experts believe
the more likely explanation is the frequent collisions between players
and players' heads hitting the ground or a goal post.
It has long been known that multiple mild concussions are more likely than
a single episode to lead to long-term problems.
Those who have suffered at least two were significantly more likely to
report continuing problems with headaches, sleep and concentration, and
they scored significantly worse on tests of the ability to learn words,
to think quickly and to handle complex tasks.
Animal research suggests
that the youthful brain remains vulnerable after a first concussion for
a longer time than a mature brain does, so a high school athlete may need
a much longer recovery time from a concussion before returning to play
than a college player or a pro.
Also see our Concussion
In Sports & our Head
Academy of Pediatrics, December 1998
The law firm of Nelson Tyler
Langer obtained a landmark settlement on behalf of the distraught
family of a young athlete who suffered a catastrophic brain injury.
The tragedy of this unfortunate situation is that the child's injuries
and the resultant law suit could have been avoided if the athletic officials
had simply availed themselves to readily available training concerning
concussion in sports
|Concussion in Sports
|African American & Hispanic Children
and Youth at risk
Among children younger than 4 years old, African Americans had the highest
death rate per 100,000 persons. Hispanics had the next highest
rate according to a recent study published in the Archives of Pediatric
and Adolescent Medicine.
According to the National Highway Traffic Safety Administration, Young
African Americans are 50 percent less likely to use seat belts than whites
and hispanics, with the problem especially acute for men between 18 and
"The fact remains that low seat belt use among African Americans is a public
health issue of enormous impact that must be addressed now" said John Maupin,
President of Meharry Medical College.
If all African Americans used seat belts, it would save 1,300 lives a year,
prevent 26,000 injuries and reduce societal costs by $2.6 billion Maupin
of Pediatrics and Adolescent Medicine, December 1998
|NTSB - School-bus Seat
National Transportation Safety Board decided against recommending seat
belts in school buses after reviewing a report showing they sometimes can
increase injuries to children. 9/22/99
Manjit Basuta, 47, a British
nanny convicted of causing the death of a San Diego toddler by shaking
him, was sentenced to a mandatory 25 years to life in prison on October
Shock & Lightning Strike Resources & Support
Tuesday, May 23, 2000
Los Angeles Times
TV Reporter Badly Burned
By JONATHAN E. BRIGGS, Times
A veteran television news reporter assigned to cover a news conference
in Hollywood was seriously burned Monday when the microwave transmitter
extending from a KABC van came too close to a 34,500-volt power line and
caused an explosion.
The reporter, Adrienne Alpert, 48, was airlifted to Grossman Burn Center
in Sherman Oaks, where doctors performed emergency surgery to restore blood
flow to burn areas over 25% of her body.
Heather MacKenzie, Alpert's photographer, and a Los Angeles police officer
suffered minor injuries and were treated at Cedars-Sinai Medical Center
The accident occurred about 9:45 a.m. as Alpert and MacKenzie were setting
up for a live broadcast from the corner of Santa Monica Boulevard and Gordon
Street, near the Hollywood Forever Cemetery.
According to witnesses, Alpert was inside the van as the transmitter was
being raised several feet. MacKenzie was helping position the transmitter
when it touched or came near a high-voltage wire. That created a power
arc that triggered an explosion, authorities said.
"The arcing looked like a miniature lightning bolt," said Los Angeles Police
Officer Patrick Beighley, who was injured.
Beighley said he saw Alpert
in the front seat, just about to get out of the van, when "there was an
illumination and then a concussive explosion." -more-
to full text in LA Times.com
Shock & Lightning Strike
Capitol Watch 2000
The Senate is
at a critical juncture in its
consideration of Senator
Schumer's clinic violence amendment. Senators must hear from voters
that violent criminals should not be able to avoid paying court-assessed
penalties by declaring bankruptcy. Please keep the calls and e-mails
coming until you hear from us that a vote has taken place! Forward
this message to pro-choice
friends and co-workers.
Call the Capitol Switchboard
Ask them to transfer you
to your Senator and urge him or her to support the Schumer Bankruptcy Amendment.
Click here to send an instant
email message. .
|Head Injuries Top List
June 20, 2000
neck injuries, account for
nearly 70 percent of the
cases that hospitals see
says a new
study reported on by Dr.
Mary Bailey, at the Pediatric Academic Societies
and the American Academy
Joint Meeting in Boston
numbers may only point
to a bigger problem. "Head
are severe enough to get
someone admitted to the hospital really represent only the tip of the iceberg,
compared to what we see in the emergency room," says Dr. Mary Hegenbarth,
who specializes in pediatric emergencies at Children's Mercy Hospital in
Kansas City, Mo. "In fact, we'll see tons of head injuries that don't get
Statistics for this study
came from the National Pediatric Trauma
am a high school student and I was knocked out in a car wreck almost 1
year ago. I thought things would be back to normal by now, but I'm
still having balance, memory and concentration problems.
to my family doctor and he says he doesn't know why I still have problems,
but he says they should clear up soon.
have to have a MRI scan the week before school starts. Then, for the rest
of the term, I will miss lots of days of school because of ongoing doctor
MRI's don't hurt but I can't help but worry if something is wrong.
an honors student, now I struggle to make B's. My classmates have noticed
and tease me for it.
I didn't want
my teachers to know about any of this, and now they will find out because
I'll miss so much school. How should I handle this?
Sorry for the
sob story. - SZE
| A. It's
only natural to feel worried when symptoms linger on, and doctors don't
have ready answers. I remember, how frustrating it was for
me to have my life revolve around doctor appointments during the first
few years after my head injury.
there, this too will pass.
mood and concentration problems don't clear up in the next few months you
should see a adolescent neuropsychologist. That's a specialist in brain
injuries in youngsters.
I had a balance problem
and suffered terrible dizziness for the first few years following my head
injury, but gradually it resolved completely. However, you might
want to check out the Vestibular Disorders
Associations for information on inner ear disorders.
Keep track of
your symptoms in a journal,
and discuss them with your doctors so that you will have an objective
record of your medical recovery.
teachers, clearly, they will need to be informed of your injuries, but
I think that if you're honest with them and put forth a good effort, you'll
find that they will work with you on this. See our Little
Red Schoolhouse page for info on educational rights for students
Try not to worry
brain injuries tend to heal slowly. There are effective work-arounds
that will help you get though the rough spots.
You'll find information and
resources on the Head Injury Hotline web site http://www.headinjury.com.
The site integrates resources
from diverse organizations including support groups, rehabilitation and
research sites as well as lay and professional journals and more.
You can get information, join a support group, or a discussion group
Attorneys at Law
Saturday, May 4,
OnLine Teen Support Group
OnLine Family Support Group
Seattle Support Group
Call for details:
|Spring Conference 2000
Techniques for the Use and
Rehabilitation of Adults and Children with Acquired/Traumatic Brain Injury
Featuring - Oliver Sachs, MD
"Hidden Brain Injury and Recovery"
May 24 - 25, 2000
Injury Society -
|Save this date!
2nd NATIONAL NAA CONFERENCE
Speaking Out! 2000
June 1-4, 2000
Classic 5-mile race or 2.5 mile walk. June 11th, 2000
Brain Injury Clubhouse
Fund Raisers -
going, benefit the Recovery
Awareness Foundation Founded in 1998 provides technical, emotional,
and financial support to caregivers of brain injury survivors. http://home.tbinet.org/raf/
Program and Registration now available!
International Conference on Self-Determination & Individualized
Friends and Survivors Standing
Together -- "Tough Questions -- Good Answers for Survivors and Caregivers"
31, 1999 - Douglasville, Georgia,
|"YOU ARE GETTING SLEEPY"
Learn relaxation techniques,
investigate past lives, and find your inner child with accomplished
hypnotist, and head injury survivor, Wayson Lee, in a free workshop at
the Northeast Branch of the Washington, DC Public Library
August & September
details: Wayson Lee
|Facing the Future:
Strategies for a Lifetime of Care - Improving Outcomes for individuals
with Developmental Disabilities
Keynote speaker: Ted
November 2 - 4, 2000
Wyndham Franklin Plaza Hotel
- Phila, Pa, Phone: 856-429-5637, ext 593
|Pacific Coast Brain Injury
Canadian Brain Injury
National Conference on Brain Injury Vancouver 2000
November 16 - 18, 2000
Increase understanding of
the problems faced by people living with brain injury.
The Westin Bayshore Hotel.
Vancouver BC - url: http://www.bcbia.org/
Contact: Darcel Moro,
I am scheduled to address a federal, Interagency
Conference on TBI 2000. The conference
will take place in December 1999. My working title is the TBI
Rehab: The Real Y2K Bug. Your contributions and
comments are welcome and will be considered for inclusion into my
testimony. Link to: Related
Link to: Text
of Comments on behalf of Head Injury Hotline
National Head Injury
Brain Injury Support Fund
Founded in 1995 a tbi survivor
provides financial and emotional support to needy brain injury survivors.
Giving limited to New Hampshire residents.
|White House Intern Program
Volunteer internships - for college-age students, applicants
must be at least 18 years of age.
Contact: Jonathan Young
a complete mailing address,
get an application by return mail.
Care Assistance Mailing List:
Users Mailing List:
|Early Intervention Directory
If your child suffered a brain injury and is under the age of five,
they may be eligible for early intervention services. To find the contact
information for the Early Intervention program in your area, click here
the Ashes, Constance Miller & Kay Campbell - The first head
injury survivors owners manual. Written by survivors for survivors
Originally published in 1987 revised 1994 - an enduring resource
for survivors, families and the professional serving them. http://www.headinjury.com
- Free copies available for support groups. email
requests to: firstname.lastname@example.org
|Web Site Design &
Vision Defects: A Critique
is a critique of the web site of a prominent brain injury rehab center.
Once the page loaded I looked at the left side and was shocked by
the design. The page has a menu on the left, which is fine, but it superimposes
text upon a simulated gray
One common screening
method for detecting the presence of brain damage is to present visual
stimuli which consist of objects in the foreground over a complex background.
In some cases
of brain injury the subject cannot identify what is in the foreground because
of background interference. The striations and visual cacophony of
the simulated marble is an awful choice for professionals in brain injury!
of the way that
the rods and cones function
in the retina, it is always unwise to present BLUE text over a dark background.
I sent a short note to the organization suggesting a modification of the
The same blue
text would be okay over a light, perhaps yellowish background.
M. Chilton, MA, ARP
Rehabilitation Systems Consultant
300 Delhi Street
Guelph, ON N1E 4L1
Thank you for contacting us. We're
glad that you found enough
useful info on our site to make a link to it!
We've visited your site and made links to it from several of our pages
including our links page of course, and, the pages with references to injuries.
I hope this will help some of the young boxers who read our page for information
to get a fuller picture of the risks and things to watch out for.
Dee Williams & Julie