Copyright
© 1998 brain Injury Resource Center
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Brain
InjurySupport Group Links
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From
The Ashes:
Our Brain Injury Survivor's Guide
 Secure
Donations
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More
than just a bump on the head! Though
not always visible and sometimes seemingly minor, head
injury is complex. It can cause physical, cognitive, social, and
vocational
changes. In many cases recovery becomes a lifelong process of adjustments
and accommodations for the injured person and the family.
Depending on the extent
and location of the injury, impairments caused by a head injury
can vary widely. The irony of mild head injuries is that often, such injuries
do not even require a hospital stay, yet they result in changes so profound
that lives are forever changed.
Some common
impairments include difficulties with memory, mood, and concentration.
Others include significant deficits in organizational and reasoning skills,
learning, cognitive, and executive functions.
Recovery from a head injury can be inconsistent.
In many cases gains may be closely followed by setbacks and plateaus. A
"plateau" is not evidence that functional improvement has ended. Frequently,
plateaus are followed by gains.
Changes in memory,
social and organizational skills after a brain injury makes it difficult
to function in complex environments. Only individuals and families who
live with brain injury can truly understand the experience. You and your
family have lived the experience and by necessity learned
about brain injury and |
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D. Mortz Inspirational Award
est. 2002 |
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The Alex Center
for Children
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Secure
Donations
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Resources & Support in Southern CA - meets 6:30-8:00 pm
-- last TUES of MONTH @ The Claremont Club; 1777 Monte-Vista Ave, Claremont
,CA Telephone: Dr. Karen Salter- Moss,
909-624-6005 -- OR Melinda Bowen, 909 931-9478 |
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 TBI
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its consequences. Others will not fully
understand because they lack knowledge
and understanding of brain injury.
The needs of those living with
brain injuries are complex and change over time. As you seek services you
will meet others who do not fully understand brain injury. Educating
others about brain injury is an important role for you to play. While brain
injury has many common features, each individual and family bring their
own unique needs and perspective to the experience. No one will be able
to speak about your needs
and experiences as well as you can. The education of others
will be a continuing process as your needs change.
Education is part of the advocacy
process by which you can build awareness and acceptance. It can also
help match services and programs with your strengths and needs, develop
partnerships with professionals, and work toward changing the system.
Your life today is probably very different
than the one you had before brain injury. Looking back, you might
be surprised to see that you have grown
through this experience. As you look toward the future, know that
you are not alone. Organizations, agencies and services listed on the pages
of this site can help you. (Scroll down to links to support groups.)
Reach out to them and build
a network of support for yourself and your family. With the
support and help of others, you and your family will be able to set out
in a new, rewarding direction.
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Brain Injury Information
& Support
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| Brain Injury Society - Brooklyn,
NY 11230 -- Telephone: 718-645-4401--Referrals, consumer and legal
advocacy, and support groups. NYS Medicaid Waiver Provider Services, educational
forums, and decision support. url: http://www.bisociety.org |
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The Brain Injury Alliance of
Oregon PO Box 549, Molalla OR 97038, Telephone:
503-740.3155;
Toll Free: 800-544-5243 -- url: http://www.biaoregon.org
-- email: biaor@biaoregon.org |
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Brain Injury Resource Center
A non profit clearinghouse founded and operated by brain injury survivors
since 1985. Visitors get information, join a discussion group, build
advocacy skills, and self-care skills. The site integrates resources
from diverse organizations including support groups, rehabilitation, and
research sites, as well as lay and professional journals and more.
email: brain@headinjury.com
-- url: http://www.headinjury.com -- Telephone: 206-621-8558 |
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| Brain Injury Info Referral &
Resource Development-- BIRRDsong.org |
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| Brainline.org -- Preventing
treating and living with traumatic brain injury. http://www.brainline.org |
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| Central Florida Brain
Injury Support Group -- http://www.brainsupportgroup.org |
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| Traumatic
Brain Injury Survivors Network Development Project -- http://tobtr.com/s/2339823 |
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| Mouth Magazine - PO Box
558 Topeka, KS 66601-Bimonthly magazine. Subscription info.url:
http://www.mouthmag.org/ |
| New Beginnings Foundation For Brain Injury Awareness http://www.jessicaetaylor.org
FOUNDATION FOR BRAIN INJURY AWARENESS |
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| TPN Inc., The Perspectives
Network - PO Box 1859, Cumming GA 30028-1859 - Voice/Fax:
770-844-6898 -- Provides forums and resources for persons with brain injury,
their families, caregivers, friends and the professionals who serve them.
Their goals are to promote a sense of community, and to increase public
awareness of brain injury. url: http://www.tbi.org -- email:
TPN@tbi.org |
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TBI Support Fund
- Founded in 1995 provides financial and emotional support to needy
TBI survivors. Giving limited to New Hampshire residents. email:
info@braininjurysupport.org -
url: http://www.braininjurysupport.org |
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| TBI Club of Portland Oregon. (503) 248-1955 |
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| Traumatic Brain Injury -
Dedicated to survivors and all who wish to learn more about traumatic brain
injury. url: http://bjscloset.org/ |
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Trident Head Injury Support Group
-- 1812 Sam Rittenberg Blvd., Ste 6, Charleston, SC
Telephone: 843 852-5550 ext.14 or 843-881-1214
email: cdiresta@dsncc.com - url: http://www.thisg.com |
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| Traumatic Brain Injury Resource
-- offers traumatic brain injury (TBI) information, support, and resources
for preventing, treating, and living with traumatic brain injury.BrainLine.org
is a WETA (Public TV )website funded by the Defense and Veterans Brain
Injury Center through a contract with the Henry M. Jackson Foundation.
url: http://www.brainline.org |
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Clubhouse Models
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| HansonHouse TBI Clubhouse
- Enhancing self- determination, independence and productive living for
survivors of Traumatic Brain Injury. 173 Front Street, Berea, OH
-- Telephone: 440-234-9900 -- email: joannboggs@aol.com |
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Hickok Center for Brain Injury,
Inc,.274 N. Goodman St, Suite C-264, Rochester, NY 14607-1154
Phone: (585) 271-8640 -- Fax: (585) 271-8688 -- email: npeers@rochester.rr.com
website: http://www.hickokcenter.org |
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Hy Feinstein Clubhouse --
Long
Island Head Injury Assoc -- Provides info on TBI, referrals to facilities,
professionals and/or programs. Also provides support groups in Nassau and
Suffolk Counties of New York. 65 Austin Blvd., Commack, NY
Telephone: 516-543-2245 - url: http://www.lihia.org/ |
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Jodi House -- 625 Chapala
St, Santa Barbara, CA 83105 -
Telephone: (805) 563-2882 ext: 2 -- A clubhouse type day program
serving TBI survivors
and their families since 1994.
url: http://www.jodihouse.org/
email: cheryl@jodihouse.org |
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Opportunity Project
- Millburn, NJ. ABI Clubhouse offers vocational assistance, socialization,
computer training, and resources. Telephone: 973-921-1000
email: project@opportunityproject.org
url: http:// www.opportunityproject.org |
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Midwest Brain Injury
Clubhouse - Chicago Ill - Telephone: 312-932-1120
- Non-profit Clubhouse for adults who have had a brain injury. The
Clubhouse is run by the members for the members. A small staff assists
members with the daily operations of the Clubhouse. url: http://www.braininjuryclubhouse.org/ |
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Brain Injury Information
& Support continued
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IN LOVING MEMORY
OF
Jason Wesson
7/23/77 TO
12-12-08
7/23/78 Loving Son
and Father
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Secure
Donations
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Foundations
& Model Systems
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The Betty Clooney Foundation - Brain injury information, resource
and case management assistance- 4426 Village Rd, Long Beach, CA -
Telephone:
562-938-9005
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Brain Injury Association of California,
Inc. (BIACA) - PO Box 1410, Mill Valley, CA 94942-1410 - Support group
contact; http://www.brainstorming4us.com --
Toll Free: 888-662-4222 email: info@biaca.org --
url: http://www.biaca.org |
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California Brain Injury Association
2658 Mt. Vernon Ave., Bakersfield, CA 93306
Telephone: (661) 872-4903; Fax: (661) 873-2508
url: http://www.calbia.org --
email: calbiainfo@yahoo.com |
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Brain Injury Association Inc.
McLean, VA -- National organization with chapters in many states.
Spanish Language services available -- url: http://www.biausa.org |
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Brain Injury Association of Florida
(BIAF)
201 E Sample Rd. Pompano Beach FL 33064
Telephone: 954-786-2400 - Fax: 954-786-2437
url: http://www.biaf.org/ -- email: info@biaf.org |
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Brain Injury Association of Texas
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url: http://www.biatx.org |
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Brain Injury Association of Illinois
P.O. Box 64420, Chicago, IL 60664-0420
Phone (312) 726-5699 Fax (312) 630-4011
url: http://www.biail.org --email: <info@biail.org> |
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International Brain
Injury Assoc - 700 Harris St
Ste 205, Charlottesville, VA 22903 - provides
scientific and medical leadership worldwide in the field of brain injury.
Telephone:
804-296-4242
url: http://www.internationalbrain.org
email: info@internationalbrain.org |
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Foundation of Hope
http://www.hopestarfoundation.org |
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Hemi-Kids Foundation -
Provides information and support for families of children with hemiplegia,
hemiparesis, or pediatric stroke.
url: http://www.hemikids.org |
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| Long Island Head Injury Assoc,
65 Austin Blvd, Commack, NY11725, Telephone: 631-543-2263, Fax:
631-543-2261 -- url: http://LIHIA.org |
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| New Options TBI Project - Central
CA -1395 - 41st AVE #B, Capitola, CA 95010 Telephone:
831-462-8720; Fax: 831-462-8727 |
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Pittsburgh Area Brain Injury Alliance.
url: http://www.pabia.org |
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San Diego Brain Injury Foundation
(SDBIF) Providing information, support, education, and community awareness
for brain injury survivors and their families in San Diego, California
since 1983. English and Spanish -
Phone: 619-294-6541- email: sushans6@aol.com - url:
http://www.Sdbif.org/ |
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San Francisco TBI Network - St Mary's Med. Ctr.
207 Skyline Blvd, SF, CA 9432
Telephone: 415-665-4100 - Fax: 415-665-4107 |
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| St. Judes Brain Injury Network
- Serving Orange County - Adult Assistance and Case Management for Adults
with Traumatic Brain Injury only Telephone: 714-449-4977 - url:
http://www.tbioc.org |
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| TBI & SCI Projects
- Located at Santa Clara Valley Medical Center - catalogue
of California TBI & SCI resources -- url: http://www.
tbi-sci.org -- email: tbird@tbi-sci.org |
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Whiplash Injury Support Group
-- Info on whiplash injury protection.Wedge Support Products - Phone:
888-800-7117 --
url: http://www.addonheadrest.com -- email: addonheadrest@worldnet.att.net |
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Canadian
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Brain Injury Association of Canada
/ Association canadienne des lésés cérébraux
- 440 Laurier Ave. West, Suite 200, Ottawa, Ontario, K1R 7X6
Phone: 613-762-1222 0 00 00 Toll free line/sans frais:
1-866-977-2492
http://biac-aclc.ca/ |
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| Brain Injury Association of Alberta
- Canada -- url: http://www.biaa.ab.ca/ |
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BIAN -- Brain Injury
Assoc Network, Nipissing, Canada --
url: http://dawn.thot.net/brain/ |
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Brain Injury Association
of London and Region -
url: http://www.braininjurylondon.on.ca |
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Brain Injury Association
of Chatham-Kent - New Beginnings Club
9 Maple Leaf Drive, Chatham, Ontario N7M 6H2 Canada
Phone: 519-351-0297 -- url: http://newbeginnings-cksl.com/ |
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Brain Injury Association
of Nova Scotia --
P.O. Box 8804, Halifax, Nova Scotia, B3K 5M4
Telephone: 902-473-7301; Fax: 902-473-7302
url: http://www3.ns.sympatico.ca/bians1/ |
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Brain Injury Association of Sarnia-Lambton
-- 387 Exmouth St, Sarnia, On, N7T 5N8 -- Phone: 519-337-5657
Fax: 519-337-4317
http://www.biasl.ca/ |
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Brain Injury Association of Waterloo-Wellington
-- 607 King Street West
Suite 5A. Kitchener, Ontario, Canada N2G 1C7 -- Phone: (519) 579-5300
Email: biaww@bellnet.ca -- Web: http://www.biaww.com |
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| Manitoba Brain Injury Assocation
-- url: http://mbia.ca/wp/ |
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Newfoundland & Labrador Brain
Injury Assoc , Ste 1213, Southcott Hall,100 Forest Road,
St. John's, NF, A1N 1E5
TelePphone: 709-579-3070; Fax: 709-579-3109 - email:
nbia@avint.net - url: http://www.nlbia.ca/ |
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Ontario Brain Injury Association
- PO Box 2338, St. Catherines, On, Canada L2M 7M7 -- Telephone:
905-641-8877; Fax: 905-641-0323
url: http://www.obia.on.ca/ |
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Northern Brain Injury Association,1237-4th
Ave-- Prince George, BC Canada V2L 3J5 -- Phone: 250-562-4673 --
Toll
Free: 1-866-979-HOPE (4673)
http://www.nbia.ca |
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| Saskatchewan Brain Injury Assoc
- 2310 Louise Ave, Saskatoon, SK, Canada S7J 2C7 -- Phone: 506-373-1555
Fax:
306-373-5655 - http://www.sbia.ca/ |
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Victoria Brain Injury Society-
Units D & E, 830 Pembroke Street, Victoria BC V8T 1H9 -- Canada --
Phone:
250-598-9339 - Fax: 250 598-9363 -
url: http://vbis.ca |
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Acquired Brain Injury Society
of the Yukon A project of the Pacific Coast Brain Injury
Conference, An online education and networking site for the Brain Injury
Community in B.C. and beyond. Phone: 867-668-5283
-- url: http://www.brainstreams.ca/ |
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International
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| Child Brain Injury
Trust -- url: http://www.childbraininjurytrust.org.uk/ |
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Brain InjuryAssociation Israel, B.I.A.I,
email: mugrabin@zahav.net.il |
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| Head
Injuries Trust for Scotland (HITS) -- Tel: 0141-332-6104 - http://www.192.com/atozbusiness/glasgow-g4/charities |
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| BRAIN INJURY AUSTRALIA
-- http://www.braininjuryaustralia.org.au/ |
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Headway Victoria. Australia
-- 2nd Fl, 212 King Street, Melbourne, 3000. Australia. A community
based non-profit group.
Telephone: (03 )9482- 2955 - url: http://www.headwayvictoria.org.au/ |
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Headway Ireland -- 1-3 Manor
St. Business Park Dublin Ireland
Tel: 01 810 2066 -- http://www.headway.ie
email: services@headway.ie |
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| Headway - United Kingdom
-- A charitable family support group for survivors of acquired brain
- url:
http://www.headway.org.uk |
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Head Injury Society of
New Zealand
url: http://www.brain-injury.org.nz/ |
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Herefordshire
Headway - Headway House, Trenchard Ave, Credenhill, Herefordshire
HR4 7DX -- Dedicated to the care and rehabilitation of victims of severe
brain injury in Herefordshire, UK. -- Phone: 01432-761000
url: http://www.herefordshire-headway.co.uk/ |
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International Brain
Injury Assoc - 700 Harris St, Ste 205, Charlottesville, VA 22903
- provides scientific and medical leadership worldwide in the field of
brain injury.
Telephone:
804- 296-4242 -- url: http://www.internationalbrain.org
email: info@internationalbrain.org |
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| Waikato Head Injury Society
- New Zealand -- url: http://whis.nzl.org |
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| Union Nationale des Association
de Familles de Traumatises Craniens -- France url:
http://www.unaf.fr |
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Special Mention
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| Near Drown - Links to
parents of near drown online support group url: http://www.neardrown.com/ |
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Recovery Awareness Foundation
Founded in 1998 provides technical, emotional, and
financial support to caregivers of brain injury survivors.
email: recovery@shore.intercom.net
url: http://www.tbinet.org/raf/ |
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Caregiver
Resources
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| The family and
friends of the victim feel the psychic repercussions of the
head injury acutely as well. Caring for an injured family member
can be very demanding and result in economic loss and emotional burdens.
It can change the very nature of family life; the resultant emotional difficulties
can affect the cohesiveness of the family unit. Typically, the emotional
damage is intense, affecting family and friends for years afterward and
sometimes leading to the breakup of previously stable family units. |
| Care-giver.com --
Resourses and information for caregivers. url: http://www.care-giver.com/ |
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| Empowering Caregivers--
Resourses and information for caregivers. url: http://www.care-givers.com |
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| Family Caregiver Alliance
- offers online information and support to families of persons with
traumatic brain injury. url: http://www.caregiver.org - |
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National Family Caregivers Association
NFCA -- 10400 Connecticut Avenue, Ste 500, Kensington, MD 20895-3944 --Dedicated
to making life better for America's family caregivers. Telephone:
301-942-6430;
Toll Free: 800-896-3650; Fax:
301-942-2302 -
url: http://www.nfcacares.org -
email: jeannie@nfcacares.org |
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National Fathers Network
-- An excellent site pertaining to kids, teenagers and adults.
url: http://www.fathersnetwork.org/ |
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Orange Caregiver Resource Center -- Telephone: 714-578-8670
Toll
Free: 800-543-8312
url: ttp://www.caregiveroc.org |
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TBI Support Group for Families & Survivors
Gaylord Hospital Conference Rm
Wallingford, CT
Telephone: 203-284-2800, ext 3404 |
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Today's caregiver Magazine
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url: http://www.caregiver.com/ |
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| Well Spouse Foundation
- offers information and support. url: http://www.wellspouse.org
-- email: wellspouse@aol.com |
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Survivor
& Family Sites:
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| Brain Injury Recovery Network
-- http://tbirecovery.org |
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Brain Injury
Resource for Victoria, B.C., Canada
Advocacy, support resources. Assistance with landlords, income and
disability benefits. rurl: http://members.shaw.ca/social.work/index.html |
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| Brain Injury Network
- Survivor's advocacy organization -- http://www.braininjurynetwork.org |
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| Brain Injury Global Picnic
-- Annual event promotes global brain injury awareness. Register
your group -- http://www.biglobalpicnic.org |
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Cafe Plus
-- 216 W. Manlius St., E. Syracuse, N.Y., Telephone: 315- 446-3124
- A social group for people who have survived head injury. Meets
every Sat. 12 to 4, p.m., est.Refreshments, Companionship and much more!
url:
http://www.dreamscape.com/cafeplus/ ail:
cafeplus@dreamscape.com |
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| Family Friendly Fun
& Special Needs -- Resources offers access to mind, body and
spirit- enriching information that enhances the quality and enjoyment of
family life with special needs. url: http://www.family-friendly-fun.com |
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| Marianne Hartman Robards
- Personal account of a brain injury survivor who suffered a brain injury
on a roller coaster ride. url: http://headaches.about.com |
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| Ms Wheelchair
Washington Program -- Celebrating achievement, advocacy and opportunity
-- http://mswheelchairwashington.blog spot.com |
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| No Tears In Heaven
-- Est. in 2000 following their 12 year old son's anoxic brain injury due
to cardiac arrest url: http://www.notearsinheaven.com/ |
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Survivors
Living Alone Proudly (S.L.A.P.) - Brain stem hemorrhage survivor
living alone seeks online chat with other brain injury survivors living
alone.
url: http://injury_survivors.homestead.com/home.html |
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| TBI Talks -- Motivational
speaker Greg Goldberg - http://www.tbitalks.com |
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| Traumatic Brain Injury
- http://www.traumatic-braininjury.com |
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206-621-8558
