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the best practices in the field of 
Traumatic Brain Injury

get all you need & more:  experience higher standards in brain trauma services -- 206-621-8558 
Copyright © 1998 brain Injury Resource Center
Brain InjurySupport Group Links
From The Ashes:
Our Brain Injury Survivor's Guide

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    More than just a bump on the head!  Though not always visible and sometimes seemingly minor, head injury is complex. It can cause physical, cognitive, social, and vocational changes. In many cases recovery becomes a lifelong process of adjustments and accommodations for the injured person and the family. 
    Depending on the extent and location of the injury, impairments caused by a head injury can vary widely. The irony of mild head injuries is that often, such injuries do not even require a hospital stay, yet they result in changes so profound that lives are forever changed. 
     Some common impairments include difficulties with memory, mood, and concentration. Others include significant deficits in organizational and reasoning skills, learning, cognitive, and executive functions.
     Recovery from a head injury can be inconsistent. In many cases gains may be closely followed by setbacks and plateaus. A "plateau" is not evidence that functional improvement has ended. Frequently, plateaus are followed by gains. 
   Changes in memory, social and organizational skills after a brain injury makes it difficult to function in complex environments. Only individuals and families who live with brain injury can truly understand the experience. You and your family have lived the experience and by necessity learned about brain injury and
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206-621-8558

Margaret's Fables
MARTHA'S FABLES
"A collection of delightful short stories embedded with lessons to live by. A good refresher following brain injury" 
By Martha Marcum, 
mother of  a brain injury survivor 
buy it at: 
http://www.Digital-AmazonKindle.com
http://www.Printed-CreateSpace.com


Life after brain injury
Getting Started
Essential Skills
Personal Safety Net
Denial
When I Grow up
Daily Journal
Loss Self
Found Self
Anger
Memory Survey
Life Events Inventory
Wellness Inventory

Products 
4 Purchase

Brain Map
Pain Map
Spinal Cord Injury
Health AtoZ web site award
Resources
Disability Income
Self-Employment Funding
Work Re-entry
Education Resources
Scholarships
Fatigue

Autograf
Specialty Haircare Products

D. Mortz Inspirational Award
est. 2002



Sponsor
Info


The Alex Center for Children
Secure Donations
 
Resources & Support in Southern CA - meets 6:30-8:00 pm -- last TUES of MONTH @ The Claremont Club; 1777 Monte-Vista Ave, Claremont ,CA Telephone: Dr. Karen Salter- Moss, 
909-624-6005 -- OR Melinda Bowen, 909 931-9478
scales of justiceTBI  Lawyers 
A Comprehensive Home Health Service
  its consequences. Others will not fully understand because they lack knowledge and understanding of brain injury. 

       The needs of those living with brain injuries are complex and change over time. As you seek services you will meet others who do not fully understand brain injury.  Educating others about brain injury is an important role for you to play. While brain injury has many common features, each individual and family bring their own unique needs and perspective to the experience. No one will be able to speak about your needs and experiences as well as you can.  The education of others will be a continuing process as your needs change.

       Education is part of the advocacy process by which you can build awareness and acceptance.  It can also help match services and programs with your strengths and needs, develop partnerships with professionals, and  work toward changing the system. 

     Your life today is probably very different than the one you had before brain injury.  Looking back, you might be surprised to see that you have grown through this experience.  As you look toward the future, know that you are not alone. Organizations, agencies and services listed on the pages of this site can help you. (Scroll down to links to support groups.)

       Reach out to them and build a network of support for yourself and your family.  With the support and help of others, you and your family will be able to set out in a new, rewarding direction.


Brain Injury Information & Support
Brain Injury Society - Brooklyn, NY 11230 -- Telephone: 718-645-4401--Referrals, consumer and legal advocacy, and support groups. NYS Medicaid Waiver Provider Services, educational forums, and decision support. url: http://www.bisociety.org 
The Brain Injury Alliance of Oregon  PO Box 549, Molalla OR 97038, Telephone: 503-740.3155;
Toll Free: 800-544-5243 -- url: http://www.biaoregon.org  -- email: biaor@biaoregon.org
Brain Injury Resource Center
A non profit clearinghouse founded and operated by brain injury survivors since 1985.  Visitors get information, join a discussion group, build advocacy skills, and self-care skills.  The site integrates resources from diverse organizations including support groups, rehabilitation, and research sites, as well as lay and professional journals and more. 
email: brain@headinjury.com -- url: http://www.headinjury.com -- Telephone:  206-621-8558
Brain Injury Info Referral & Resource Development-- BIRRDsong.org
Brainline.org -- Preventing treating and living with traumatic brain injury. http://www.brainline.org
Central Florida Brain Injury Support Group -- http://www.brainsupportgroup.org
Traumatic Brain Injury Survivors Network Development Project -- http://tobtr.com/s/2339823
Mouth Magazine - PO Box 558 Topeka, KS 66601-Bimonthly  magazine. Subscription info.url: http://www.mouthmag.org/
New Beginnings Foundation For Brain Injury Awareness http://www.jessicaetaylor.org FOUNDATION FOR BRAIN INJURY AWARENESS
TPN Inc., The Perspectives Network - PO Box 1859, Cumming  GA  30028-1859 - Voice/Fax: 770-844-6898 -- Provides forums and resources for persons with brain injury, their families, caregivers, friends and the professionals who serve them.  Their goals are to promote a sense of community, and to increase public awareness of brain injury. url: http://www.tbi.org -- email: TPN@tbi.org
TBI Support Fund - Founded in 1995 provides financial and emotional support to needy TBI survivors. Giving limited to New Hampshire residents. email: info@braininjurysupport.org - 
url: http://www.braininjurysupport.org
TBI Club of Portland Oregon. (503) 248-1955 
Traumatic Brain Injury - Dedicated to survivors and all who wish to learn more about traumatic brain injury. url: http://bjscloset.org/
Trident Head Injury Support Group -- 1812 Sam Rittenberg Blvd., Ste 6, Charleston, SC 
Telephone: 843 852-5550 ext.14 or 843-881-1214 
email: cdiresta@dsncc.com - url: http://www.thisg.com
Traumatic Brain Injury Resource -- offers traumatic brain injury (TBI) information, support, and resources for preventing, treating, and living with traumatic brain injury.BrainLine.org is a WETA (Public TV )website funded by the Defense and Veterans Brain Injury Center through a contract with the Henry M. Jackson Foundation. url: http://www.brainline.org 

Clubhouse Models
HansonHouse TBI Clubhouse - Enhancing self- determination, independence and productive living for survivors of  Traumatic Brain Injury. 173 Front Street, Berea, OH -- Telephone: 440-234-9900 -- email: joannboggs@aol.com 
Hickok Center for Brain Injury, Inc,.274 N. Goodman St, Suite C-264, Rochester, NY 14607-1154
Phone: (585) 271-8640 --  Fax: (585) 271-8688 -- email: npeers@rochester.rr.com
website: http://www.hickokcenter.org
Hy Feinstein Clubhouse -- Long Island Head Injury Assoc -- Provides info on TBI, referrals to facilities, professionals and/or programs. Also provides support groups in Nassau and Suffolk Counties of New York. 65 Austin Blvd., Commack, NY 
Telephone: 516-543-2245 - url: http://www.lihia.org/
Jodi House -- 625 Chapala St, Santa Barbara, CA 83105 - 
Telephone: (805) 563-2882 ext: 2 -- A clubhouse type day program serving TBI survivors 
and their families since 1994.
url: http://www.jodihouse.org/
email: cheryl@jodihouse.org 
Opportunity Project - Millburn, NJ. ABI Clubhouse offers vocational assistance, socialization, computer training, and resources. Telephone:  973-921-1000
email: project@opportunityproject.org
url: http:// www.opportunityproject.org 
Midwest Brain Injury Clubhouse - Chicago Ill - Telephone:  312-932-1120
- Non-profit Clubhouse for adults who have had a brain injury. The Clubhouse is run by the members for the members. A small staff assists members with the daily operations of the Clubhouse. url:  http://www.braininjuryclubhouse.org/

Brain Injury Information & Support continued
IN LOVING MEMORY OF
Jason Wesson
7/23/77  TO   12-12-08 
7/23/78 Loving Son and Father
Secure Dontions via PayPalSecure Donations
Foundations & Model Systems
The Betty Clooney Foundation - Brain injury information, resource and case management assistance- 4426 Village Rd, Long Beach, CA - 
Telephone: 562-938-9005                                         .
Brain Injury Association of California, Inc. (BIACA) - PO Box 1410, Mill Valley, CA 94942-1410 - Support group contact; http://www.brainstorming4us.com -- 
Toll Free: 888-662-4222  email: info@biaca.org -- 
url: http://www.biaca.org 
California Brain Injury Association
2658 Mt. Vernon Ave., Bakersfield, CA  93306
Telephone: (661) 872-4903; Fax: (661) 873-2508 
url: http://www.calbia.org -- 
email: calbiainfo@yahoo.com
Brain Injury Association Inc.
McLean, VA  -- National organization with chapters in many states.
Spanish Language services available -- url:  http://www.biausa.org
Brain Injury Association of Florida (BIAF) 
201 E Sample Rd.  Pompano Beach  FL  33064
Telephone: 954-786-2400 - Fax: 954-786-2437
url:  http://www.biaf.org/ -- email: info@biaf.org
Brain Injury Association of Texas -- 
url: http://www.biatx.org
Brain Injury Association of Illinois
P.O. Box 64420, Chicago, IL  60664-0420
Phone (312) 726-5699   Fax (312) 630-4011
url: http://www.biail.org --email: <info@biail.org>
 
International Brain Injury Assoc - 700 Harris St
Ste 205, Charlottesville, VA 22903 - provides
scientific and medical leadership worldwide in the field of brain injury. Telephone: 804-296-4242
url: http://www.internationalbrain.org 
email: info@internationalbrain.org
Foundation of Hope
http://www.hopestarfoundation.org
Hemi-Kids Foundation - Provides information and support for families of children with hemiplegia, hemiparesis, or pediatric stroke. 
url: http://www.hemikids.org
Long Island Head Injury Assoc, 65 Austin Blvd, Commack, NY11725, Telephone: 631-543-2263, Fax: 631-543-2261 -- url: http://LIHIA.org
New Options TBI Project - Central CA -1395 - 41st AVE #B, Capitola, CA 95010 Telephone: 831-462-8720; Fax: 831-462-8727
Pittsburgh Area Brain Injury Alliance
url: http://www.pabia.org
San Diego Brain Injury Foundation (SDBIF) Providing information, support, education, and community awareness for brain injury survivors and their families in San Diego, California since 1983. English and Spanish
Phone: 619-294-6541- email: sushans6@aol.com - url: http://www.Sdbif.org/
San Francisco TBI Network - St Mary's Med. Ctr.
207 Skyline Blvd, SF, CA 9432
Telephone: 415-665-4100 - Fax: 415-665-4107
St. Judes Brain Injury Network - Serving Orange County - Adult Assistance and Case Management for Adults with Traumatic Brain Injury only Telephone: 714-449-4977 - url: http://www.tbioc.org
TBI & SCI Projects -  Located at  Santa Clara Valley Medical Center - catalogue of California TBI & SCI resources --  url: http://www. tbi-sci.org -- email: tbird@tbi-sci.org
Whiplash Injury Support Group -- Info on whiplash injury protection.Wedge Support Products - Phone:  888-800-7117 -- 
url:  http://www.addonheadrest.com -- email:  addonheadrest@worldnet.att.net

Canadian
Brain Injury Association of Canada / Association canadienne des lésés cérébraux - 440 Laurier Ave. West, Suite 200, Ottawa, Ontario, K1R 7X6
Phone: 613-762-1222 0 00 00 Toll free line/sans frais: 1-866-977-2492 
http://biac-aclc.ca/
Brain Injury Association of Alberta - Canada -- url: http://www.biaa.ab.ca/
BIAN -- Brain Injury Assoc Network,  Nipissing, Canada -- 
url: http://dawn.thot.net/brain/
Brain Injury Association of London and Region
url: http://www.braininjurylondon.on.ca
Brain Injury Association of Chatham-Kent - New Beginnings Club
9 Maple Leaf Drive, Chatham, Ontario N7M 6H2 Canada
Phone: 519-351-0297 --  url: http://newbeginnings-cksl.com/
Brain Injury Association of Nova Scotia --
P.O. Box 8804, Halifax, Nova Scotia, B3K 5M4 
Telephone: 902-473-7301; Fax: 902-473-7302
url: http://www3.ns.sympatico.ca/bians1/
Brain Injury Association of Sarnia-Lambton -- 387 Exmouth St, Sarnia, On, N7T 5N8  -- Phone: 519-337-5657 Fax: 519-337-4317
http://www.biasl.ca/
Brain Injury Association of Waterloo-Wellington -- 607 King Street West
Suite 5A. Kitchener, Ontario, Canada N2G 1C7 -- Phone: (519) 579-5300 
Email: biaww@bellnet.ca -- Web: http://www.biaww.com
Manitoba Brain Injury Assocation -- url:  http://mbia.ca/wp/
Newfoundland & Labrador Brain Injury Assoc , Ste 1213, Southcott Hall,100 Forest Road,  St. John's, NF, A1N 1E5
TelePphone: 709-579-3070; Fax: 709-579-3109 - email: nbia@avint.net - url: http://www.nlbia.ca/
Ontario Brain Injury Association - PO Box 2338, St. Catherines, On, Canada L2M 7M7 -- Telephone: 905-641-8877; Fax: 905-641-0323
url: http://www.obia.on.ca/
Northern Brain Injury Association,1237-4th Ave-- Prince George, BC Canada V2L 3J5 -- Phone: 250-562-4673 -- Toll Free: 1-866-979-HOPE (4673)
http://www.nbia.ca 
Saskatchewan Brain Injury Assoc - 2310 Louise Ave, Saskatoon, SK, Canada S7J 2C7 -- Phone: 506-373-1555 Fax: 306-373-5655 - http://www.sbia.ca/
Victoria Brain Injury Society-  Units D & E, 830 Pembroke Street, Victoria BC V8T 1H9 -- Canada -- Phone: 250-598-9339 - Fax: 250 598-9363 - 
url: http://vbis.ca 
Acquired Brain Injury Society of the Yukon   A project of the Pacific Coast Brain Injury Conference, An online education and networking site for the Brain Injury Community in B.C. and beyond. Phone: 867-668-5283 
-- url: http://www.brainstreams.ca/ 
International
Child Brain Injury Trust -- url:  http://www.childbraininjurytrust.org.uk/ 
Brain InjuryAssociation Israel, B.I.A.I,
email: mugrabin@zahav.net.il
Head Injuries Trust for Scotland (HITS) -- Tel: 0141-332-6104 - http://www.192.com/atozbusiness/glasgow-g4/charities
BRAIN INJURY AUSTRALIA -- http://www.braininjuryaustralia.org.au/
Headway Victoria. Australia -- 2nd Fl, 212 King Street, Melbourne, 3000. Australia. A community based non-profit group.
Telephone: (03 )9482- 2955 - url: http://www.headwayvictoria.org.au/
Headway Ireland -- 1-3 Manor St. Business Park Dublin Ireland 
Tel: 01 810 2066  -- http://www.headway.ie
email: services@headway.ie
Headway - United Kingdom -- A charitable family support group for survivors of acquired brain - url: http://www.headway.org.uk
Head Injury Society of New Zealand
url: http://www.brain-injury.org.nz/
Herefordshire Headway - Headway House, Trenchard Ave, Credenhill, Herefordshire HR4 7DX -- Dedicated to the care and rehabilitation of victims of severe brain injury in Herefordshire, UK. -- Phone: 01432-761000
url: http://www.herefordshire-headway.co.uk/ 
International Brain Injury Assoc - 700 Harris St, Ste 205, Charlottesville, VA 22903 - provides scientific and medical leadership worldwide in the field of brain injury. Telephone: 804- 296-4242 -- url: http://www.internationalbrain.org 
email: info@internationalbrain.org
Waikato Head Injury Society - New Zealand -- url: http://whis.nzl.org
Union Nationale des Association de Familles de Traumatises Craniens -- France url:  http://www.unaf.fr
Special Mention
Experienced Brain Injury Attorneys
Near Drown - Links to parents of near drown online support group url: http://www.neardrown.com/
Recovery Awareness Foundation
Founded  in 1998 provides technical, emotional, and 
financial support to caregivers of brain injury survivors. 
email:  recovery@shore.intercom.net 
url: http://www.tbinet.org/raf/

Caregiver Resources
The family and friends of the victim feel the psychic repercussions of the head injury acutely as well.  Caring for an injured family member can be very demanding and result in economic loss and emotional burdens.  It can change the very nature of family life; the resultant emotional difficulties can affect the cohesiveness of the family unit.  Typically, the emotional damage is intense, affecting family and friends for years afterward and sometimes leading to the breakup of previously stable family units.
Care-giver.com -- Resourses and information for caregivers.  url: http://www.care-giver.com/
Empowering Caregivers-- Resourses and information for caregivers. url: http://www.care-givers.com
Family Caregiver Alliance -  offers online information and support to families of persons with traumatic brain injury. url: http://www.caregiver.org - 
National Family Caregivers Association  NFCA -- 10400 Connecticut Avenue, Ste 500, Kensington, MD 20895-3944 --Dedicated to making life better for America's family caregivers. Telephone: 301-942-6430; 
Toll Free: 800-896-3650; Fax: 301-942-2302 - 
url: http://www.nfcacares.org  - 
email: jeannie@nfcacares.org 
National Fathers Network --  An excellent site pertaining to kids, teenagers and adults. 
url: http://www.fathersnetwork.org/ 
Orange Caregiver Resource Center -- Telephone: 714-578-8670 Toll Free: 800-543-8312
url: ttp://www.caregiveroc.org
TBI Support Group for Families & Survivors
Gaylord Hospital Conference Rm
Wallingford, CT 
Telephone:  203-284-2800, ext 3404
Today's caregiver Magazine
url: http://www.caregiver.com/ 
Well Spouse Foundation - offers information and support.  url:  http://www.wellspouse.org -- email: wellspouse@aol.com 

Survivor & Family Sites:
Brain Injury Recovery Network -- http://tbirecovery.org
Brain Injury Resource for Victoria, B.C., Canada
Advocacy, support resources. Assistance with landlords, income and disability benefits.  rurl: http://members.shaw.ca/social.work/index.html
Brain Injury  Network - Survivor's advocacy organization -- http://www.braininjurynetwork.org
Brain Injury Global Picnic -- Annual event promotes  global brain injury awareness. Register your group  -- http://www.biglobalpicnic.org 
Cafe Plus -- 216 W. Manlius St., E. Syracuse, N.Y., Telephone: 315- 446-3124 - A social group for people who have survived  head injury. Meets every Sat. 12 to 4, p.m., est.Refreshments, Companionship and much more!
url: http://www.dreamscape.com/cafeplus/  ail:  cafeplus@dreamscape.com
Family Friendly Fun & Special Needs -- Resources offers access to mind, body and spirit- enriching information that enhances the quality and enjoyment of family life with special needs. url: http://www.family-friendly-fun.com
Marianne Hartman Robards - Personal account of a brain injury survivor who suffered a brain injury on a roller coaster ride. url: http://headaches.about.com
Ms Wheelchair Washington Program -- Celebrating achievement, advocacy and opportunity -- http://mswheelchairwashington.blog spot.com
No Tears In Heaven -- Est. in 2000 following their 12 year old son's anoxic brain injury due to cardiac arrest url: http://www.notearsinheaven.com/
Survivors Living Alone Proudly (S.L.A.P.) - Brain stem hemorrhage survivor living alone seeks online chat with other brain injury survivors living alone. 
url:  http://injury_survivors.homestead.com/home.html
TBI Talks  -- Motivational speaker Greg Goldberg - http://www.tbitalks.com 
Traumatic Brain Injury - http://www.traumatic-braininjury.com

Chat, Listserves  On-Line Groups, Internet Radio & blogs
Brain Injury Radio Network -- http://www.braininjurynetwork.com
Brain Injury Survivors: Photographers & Artists http://www.flickr.com/groups/539391@N24/
Catmeow Traumatic Brain Injury Blog --  http://www.catmeowbraininjury.blogspot.com
Dialogues with Dan -- a weekly Internet radio show on disabilities. Listen live at http://www.rocklandworldradio.com/ 
Dorothy Kay's blog -- http://thekayinkafka.blogspot.com/ 
Lightning Strike Electric ShockSurvivor Support group -- 
url: http://www.lightning-strike.org 
St. John's TBI-SPRT Listserv  - url: http://www.sasquatch.com/tbi/
Brain Injury Chat -- Peer support chat for survivors & family Caregivers url: http://www.braininjurychat.org
Neuro Talk - On-Line group. Post your story read and respond to others http://neurotalk.psychcentral.com
TBI Home -- A Peer Support website featuring discussion boards and a place to share brain injury stories, srt, and more. url: http://www.tbihome.org
SCI mailing-list -- http://www.chrisreevehomepage.com
Yahoo Groups - Offers  a wide range of options. Search for Brain Injury -- http://groups.yahoo.com
Listserves
Vent Users Mailing List:   This Internet mailing list is a forum where ventilator users can communicate with one another. To join, fill out the online form at the website of list owner Jim Lubin.
url: http://www.eskimo.com/~jlubin/disabled/ventuser.htm
Quadriplegic (Tetraplegic) Discussion Group:  This Internet  mailing list, called QUAD-LIST, is a forum for quadriplegics (tetraplegics) to communicate with one another. To subscribe to the list, follow the instructions found on Jim Lubin's  QUAD-LIST web page.
url: http://www.eskimo.com/~jlubin/disabled/quadlist.htm
Epilepsy Support Group  --  Self-help resources including support
url:  http://clubs.yahoo.com/clubs/epilepsysupportgroup


 
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