Copyright
© 1998 Head Injury Hotline
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Stroke,
Aneurysm, Brain Attack
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T.I.A Foundation
Traffic Intersection Awareness |
In loving memory
of
11 yr. old Tia Townsend
March 28th, 2002,
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Heartfelt gratitude to:
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The Alex Center for Children
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Advocacy
Overview |
 WARNING
SYMPTOMS OF STROKE
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Sudden weakness or numbness
of the face, arm, or leg on one side of the body.
Sudden dimness or loss of
vision, particularly in one eye.
Sudden difficulty speaking
or trouble understanding speech.
Sudden severe headache with
no known cause
Unexplained dizziness, unsteadiness,
or sudden falls, especially with any of the other signs. |
| Warning signs may last a
few moments and then disappear. They are signs of a serious condition
that won't go away without medical help - National Stroke Association |
National Institute
of Neurological Disorders and Stroke - National
Institute of Neurological Disorders and Stroke
The NINDS, an agency of the U.S. Federal Government
and a component of the National Institutes of Health and the U.S. Public
Health Service, is a lead agency for the Congressionally designated Decade
of the Brain, and the leading supporter of biomedical research on disorders
of the brain and nervous system. This site provides general information
about the institute.
URL: http://www.ninds.nih.gov/ |
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American Heart Association
- American
Heart Association
Serves as a clearinghouse that publishes a
wide variety of newsletters, brochures, journals videos, and other information.
Provides many resources on stroke. Supports nationwide affiliates
and offices. 800-553-6321. URL: http://www.americanheart.org
e-mail: strokeaha@amhrt.org |
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National Stroke
Association -
National
Stroke Association
Provides education, research, information
and referrals. Sponsors a speakers bureau, workshops, and conferences.
Publishes pamphlets, brochures, booklets, a newsletter, and a professional
journal. Sponsors nationwide chapters and support groups. URL:http://www.stroke.org
- - email: info@stroke.org |
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PSN Pediatric Stroke
Network - http://www.pediatricstrokenetwork.com/
PSN's mission is to provide support
and information to parents and families of pediatric stroke survivors.
PSN is a parent group striving to unite parents across the globe
who know first hand the effects pediatric stroke can have on children and
their families |
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| Hemi-Kids Foundation -
Provides information and support for families of children with hemiplegia,
hemiparesis, or pediatric stroke. url: http://www.hemikids.org |
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The Brain Attack Coalition
- http://www.stroke-site.org/
Provide tools for
health care professionals developing systems to enable the rapid diagnosis
and treatment of acute stroke. The coalition is a group of professional,
voluntary and government organizations whose mission is to reduce the occurrence,
disabilities and death associated with stroke. The goal of the coalition
is to strengthen and promote the relationships among its member organizations
in order to help people who have had a stroke or are at risk for a stroke. |
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| Stroke Family - http://www.strokefamily.org/ |
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Stroke
Clubs International - Stroke
Clubs International
Operates a nationwide network of support groups.
Publishes a newsletter. Galveston, Texas. 409-762-1022 email:strokeclubs@aol.com |
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South East Idaho Stroke Club
- http://www.viplaza.com/hughes/
The first known stroke club in Idaho.
Serves survivors of the Pocatello, Idaho area seeks to developing stroke
programs in other portions of Idaho. Contact: Rob Evan Hughes, L.S.W.
Stroke Survivor & Advocate for Families of Stroke |
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Survivors
Living Alone Proudly (S.L.A.P.) - Brain stem hemorrhage survivor
living alone seeks online chat with other brain injury survivors living
alone. email: terrijo_222@yahoo.com
url: http://injury_survivors.homestead.com/home.html |
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Syringomyelia Alliance Project
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P.O. Box 1586, Longview TX 75606-1586
Telephone: 903-236-7079; Toll Free: 800-2727282 - url:
http://www.asap4sm.com - email: info@asap4sm.com |
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| http://www.1800wheelchair.com |
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The Health Restoration Medical
Center - 26381 Crown Valley #130 - Mission Viejo, CA 92691 -- (800)
300-1063 -- (949) 367-8870 -- FAX:(949) 367-9779 --
url: http://www.strokedoctor.com/map.htm -- email:strokedoctor@Strokedoctor.com |
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| Software especially for those with the locked in syndrom and
visual impairment. url: http://www.heservis.nl/ |
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Locked -In Syndrome
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What is Locked-In Syndrome?
Locked-in syndrome
is a rare neurological disorder characterized by complete paralysis of
voluntary muscles in all parts of the body (except for those that control
eye movement). It may result from traumatic brain injury, vascular
diseases, demyelinating diseases, or medication overdose. Individuals with
locked-in syndrome are conscious and have cognitive function, but are unable
to speak or move. The disorder leaves the patient completely mute
and paralyzed. Communication may be possible with blinking eye movements.
Is there any treatment?
There is no cure for locked-in
syndrome, nor is there a standard course of treatment. Functional
neuromuscular stimulation may help activate some paralyzed muscles. Several
devices to help communication are available. Other treatment is symptomatic
and supportive.
What is the prognosis?
The prognosis for those with locked-in syndrome
is poor. The majority of patients do not regain function.
Source: NIDRR/National Institute
on Disability and Rehabilitation Research
url: http://www.ninds.nih.gov/health_and_medical/disorders/lockedinsyndrome_doc.htm |
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| Henry
and Ruby Moss - Visit this web site and follow the progress of
a victim of "Locked-In Syndrome," a rare and often fatal form of
stroke.
Please send donations to: "Henry Moss
Rehab Trust Fund" First Community Credit Union, PO Box 28284, St.
Louis, MO 63132 (account # 920025790)
url:http://hometown.aol.com/hmoss/myhomepage/index.html |
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Aneurysm Resources
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| Traumatic intracranial aneurysms are rare, occurring
in fewer than 1% of patients with cerebral aneurysms. They can occur
following blunt or penetrating head trauma and are more common in the
pediatric population. Traumatic aneurysms can be categorized histologically
as true, false, or mixed, with false aneurysms being the most common. These
aneurysms can present in a variety of ways, but are typically associated
with an acute episode of delayed intracranial hemorrhage with an average
time from initial trauma to aneurysm hemorrhage of approximately 21 days.
The mortality rate for patients harboring these aneurysms may be as high
as 50%. Prompt diagnosis based on arteriography and aggressive surgical
management are associated with better outcome than conservative treatment.
The authors describe a classification scheme for traumatic aneurysms based
on their anatomical location and conclude that 1) posttraumatic aneurysm
must be considered in patients with acute neurological deterioration following
closed head injury; 2) they can occur following mild closed head injury;
3) they occur more commonly in children than in adults; and 4) surgical
clipping and/or endovascular occlusion is the definitive treatment.
Intracranial aneurysms that develop following
closed head injuries present the clinician with both diagnostic challenges
and surgical difficulties. Traumatic intracranial aneurysms are rare, comprising
1% or less of all cerebral aneurysms. They can occur after even mild or
seemingly trivial head trauma, and are associated with significant morbidity
and a mortality rate as high as 50%. Although found in patients of
all ages, intracranial aneurysms are more common in the pediatric population
and may occur as the result of either blunt or penetrating trauma.
Although they occur infrequently, these lesions are well described in the
literature.
Source: Traumatic Intracranial
Aneurysms
http://www.medscape.com/19042.rhtml
Address reprint requests to: Paul S. Larson, M.D., Department
of Neurological Surgery, 210 East Gray Street, Suite 1102, Louisville,
Kentucky 40202. |
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| The Aneurysm Information
Project -- url: http://www.columbia.edu/~mdt1/ |
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Brain Aneurysm
Foundation, Inc. - Brain
Aneurysm Foundation, Inc.
Serves as an information and support organization
for brain aneurysm patients, their families, and the medical community.
Boston, MA Telephone : 617-723-3870
- url: http://www.bafound.org |
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International Resources
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| Different Strokes - This is a new charity for young stroke survivors.
Sir Walter Scott House, 2 Broadway Market, London, E8 4QJ, England -
Tel: +44 (0)171 249 6645 - url:: http://www.strokeforum.com/ |
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The Stroke Association
- CHSA House, Whitecross Street, London, EC1Y 8JJ, England
Tel: +44 (0)171 490 7999; Fax: +44 (0)171 490 2686 -
email:100761,2320@compuserve.com |
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brain@headinjury.com
206-621-8558
