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Copyright © 1998 Head Injury Hotline
Stroke, Aneurysm, Brain Attack

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In loving memory of 
11 yr. old Tia Townsend
March 28th, 2002,


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Advocacy Overview
Sudden weakness or numbness of the face, arm, or leg on one side of the body.
Sudden dimness or loss of vision, particularly in one eye. 
Sudden difficulty speaking or trouble understanding speech. 
Sudden severe headache with no known cause
Unexplained dizziness, unsteadiness, or sudden falls, especially with any of the other signs.
     Warning signs may last a few moments and then disappear.  They are signs of a serious condition that won't go away without medical help - National Stroke Association

National Institute of Neurological Disorders and Stroke  - National Institute of Neurological Disorders and Stroke
     The NINDS, an agency of the U.S. Federal Government and a component of the National Institutes of Health and the U.S. Public Health Service, is a lead agency for the Congressionally designated Decade of the Brain, and the leading supporter of biomedical research on disorders of the brain and nervous system. This site provides general information about the institute. 
URL:  http://www.ninds.nih.gov/
American Heart Association  -  American Heart Association
     Serves as a clearinghouse that publishes a wide variety of newsletters, brochures, journals videos, and other information.  Provides many resources on stroke.  Supports nationwide affiliates and offices. 800-553-6321.  URL:  http://www.americanheart.org 
e-mail:  strokeaha@amhrt.org
National Stroke Association  - National Stroke Association
     Provides education, research, information and referrals. Sponsors a speakers bureau, workshops, and conferences.  Publishes pamphlets, brochures, booklets, a newsletter, and a professional journal.  Sponsors nationwide chapters and support groups. URL:http://www.stroke.org  - -  email:  info@stroke.org
PSN Pediatric Stroke Network  - http://www.pediatricstrokenetwork.com/
       PSN's mission is to provide support  and information to parents and families of pediatric stroke survivors. PSN is a  parent group striving to unite parents across the globe who know first hand the effects pediatric stroke can have on children and their families
Hemi-Kids Foundation - Provides information and support for families of children with hemiplegia, hemiparesis, or pediatric stroke. url: http://www.hemikids.org
The Brain Attack Coalitionhttp://www.stroke-site.org/
         Provide tools for health care professionals developing systems to enable the rapid diagnosis and treatment of acute stroke. The coalition is a group of professional, voluntary and government organizations whose mission is to reduce the occurrence, disabilities and death associated with stroke.  The goal of the coalition is to strengthen and promote the relationships among its member organizations in order to help people who have had a stroke or are at risk for a stroke.
Stroke Family - http://www.strokefamily.org/
Stroke Clubs International - Stroke Clubs International
     Operates a nationwide network of support groups.  Publishes a newsletter. Galveston, Texas.  409-762-1022 email:strokeclubs@aol.com
South East Idaho Stroke Club - http://www.viplaza.com/hughes/
     The first known stroke club in Idaho.  Serves survivors of the Pocatello, Idaho area seeks to developing stroke programs in other portions of Idaho. Contact:  Rob Evan Hughes, L.S.W.
Stroke Survivor & Advocate for Families of Stroke
Survivors Living Alone Proudly (S.L.A.P.) - Brain stem hemorrhage survivor living alone seeks online chat with other brain injury survivors living alone. email: terrijo_222@yahoo.com
url: http://injury_survivors.homestead.com/home.html 
Syringomyelia Alliance Project - P.O. Box 1586, Longview TX 75606-1586 
Telephone: 903-236-7079; Toll Free: 800-2727282 - url: http://www.asap4sm.com - email: info@asap4sm.com
The Health Restoration Medical Center - 26381 Crown Valley #130 - Mission Viejo, CA 92691 -- (800) 300-1063 -- (949) 367-8870 -- FAX:(949) 367-9779   -- 
url: http://www.strokedoctor.com/map.htm -- email:strokedoctor@Strokedoctor.com
Software especially for those with the locked in syndrom and visual impairment. url: http://www.heservis.nl/
Locked -In Syndrome
What is Locked-In Syndrome?
         Locked-in syndrome is a rare neurological disorder characterized by complete paralysis of  voluntary muscles in all parts of the body (except for those that control eye movement). It may result from traumatic brain injury, vascular diseases, demyelinating diseases, or medication overdose. Individuals with locked-in syndrome are conscious and have cognitive function, but are unable to speak or move.  The disorder leaves the patient completely mute and paralyzed. Communication may be possible with blinking eye movements.

         Is there any treatment?
        There is no cure for locked-in syndrome, nor is there a standard course of treatment. Functional   neuromuscular stimulation may help activate some paralyzed muscles. Several devices to help communication are available. Other treatment is symptomatic and supportive.

    What is the prognosis?
    The prognosis for those with locked-in syndrome is poor. The majority of patients do not regain function.
Source: NIDRR/National Institute on Disability and Rehabilitation Research 
url: http://www.ninds.nih.gov/health_and_medical/disorders/lockedinsyndrome_doc.htm

Henry and Ruby Moss - Visit this web site and follow the progress of a victim of "Locked-In Syndrome," a rare and often fatal form of stroke. Please send donations to: "Henry Moss Rehab Trust Fund"  First Community Credit Union, PO Box 28284, St. Louis, MO 63132 (account # 920025790) url:http://hometown.aol.com/hmoss/myhomepage/index.html

Aneurysm Resources
    Traumatic intracranial aneurysms are rare, occurring in fewer than 1% of patients with cerebral aneurysms. They can occur following blunt or penetrating head trauma and are more common in the pediatric population. Traumatic aneurysms can be categorized histologically as true, false, or mixed, with false aneurysms being the most common. These aneurysms can present in a variety of ways, but are typically associated with an acute episode of delayed intracranial hemorrhage with an average time from initial trauma to aneurysm hemorrhage of approximately 21 days. The mortality rate for patients harboring these aneurysms may be as high as 50%. Prompt diagnosis based on arteriography and aggressive surgical management are associated with better outcome than conservative treatment. The authors describe a classification scheme for traumatic aneurysms based on their anatomical location and conclude that 1) posttraumatic aneurysm must be considered in patients with acute neurological deterioration following closed head injury; 2) they can occur following mild closed head injury; 3) they occur more commonly in children than in adults; and 4) surgical clipping and/or endovascular occlusion is the definitive treatment.

     Intracranial aneurysms that develop following closed head injuries present the clinician with both diagnostic challenges and surgical difficulties. Traumatic intracranial aneurysms are rare, comprising 1% or less of all cerebral aneurysms. They can occur after even mild or seemingly trivial head trauma, and are associated with significant morbidity and a mortality rate as high as 50%.  Although found in patients of all ages, intracranial aneurysms are more common in the pediatric population  and may occur as the result of either blunt or penetrating trauma.  Although they occur infrequently, these lesions are well described in the literature.

Source:   Traumatic Intracranial Aneurysms
Address reprint requests to: Paul S. Larson, M.D., Department of Neurological Surgery, 210 East Gray Street, Suite 1102, Louisville, Kentucky 40202.

The Aneurysm Information Project -- url:  http://www.columbia.edu/~mdt1/
Brain Aneurysm Foundation, Inc. -  Brain Aneurysm Foundation, Inc.
     Serves as an information and support organization for brain aneurysm patients, their families, and the  medical community. Boston, MA   Telephone : 617-723-3870  - url: http://www.bafound.org 
International Resources
Different Strokes - This is a new charity for young stroke survivors. Sir Walter Scott House, 2 Broadway Market, London, E8 4QJ, England - Tel: +44 (0)171 249 6645 - url:: http://www.strokeforum.com/
The Stroke Association  - CHSA House, Whitecross Street, London, EC1Y 8JJ, England 
Tel: +44 (0)171 490 7999; Fax: +44 (0)171 490 2686 - email:100761,2320@compuserve.com 

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