Copyright
© 1998 Head Injury Hotline
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Noteworthy
Publications
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From
The Ashes:
A Brain Injury Survivor's Guide
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More
than just a bump on the head! Though not always
visible and sometimes seemingly minor, head injury is complex. It can cause
physical, cognitive, social, and vocational changes. In many cases |
 206-621-8558
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recovery becomes a lifelong process of adjustments
and accommodations for the individual and the family.
Depending on the extent and location of the
injury, impairments caused by a head injury can vary widely. The irony
of mild head injuries is that often, such injuries do not even require
a hospital stay, yet they result in changes so profound that lives are
forever changed.
Some common impairments include difficulties
with memory, mood, and concentration. Others include significant deficits
in organizational and reasoning skills, learning, cognitive, and executive
functions.
Recovery from a head injury can be inconsistent.
In many cases gains may be closely followed by setbacks and plateaus. A
"plateau" is not evidence that functional improvement has ended. Typically
plateaus are followed by gains.
Changes
in memory and organizational skills after a brain injury makes it difficult
to function in complex environments. The publications on this page will
provide answers and guidance concerning many of the most puzzling aspects
of traumatic brain injury.
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Survivor
Publications
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| From the Ashes,
Constance Miller & Kay Campbell - The first head injury survivors owners
manual. Originally published in 1987 - an enduring resource for survivors,
families and the professionals serving them. http://www.headinjury.com
- Free copies available for support groups. email
requests to: brain@headinjury.com
- http://www.headinjury.com/ashesord.htm |
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| From The Ashes,
The original head injury survivor's guide. Featured
on the Super Bowl XXXIV, pre-game show!!! 01/30/00. |
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Acceptance Groups For
Survivors, A Guide for Facilitators. Nancy Bauser, ACSW, Disability
Peer Counselor
url: http://www.survivoracceptance.com |
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| Academic Recovery After Head Injury, Dinah Russell, and Anita
Sharratt - A book for teachers. Charles Thomas Publisher, 1991 |
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| Awake Again,
by Martin Krieg, Two bike rides across America after two months in
a coma, right side paralysis and clinical death. A Timeless True Story!
url:
http://www.BikeRoute.com/AwakeAgain |
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Brain-Damage
by Dick Schmelzkopf - A Book About Overcoming Cognitive Deficit and Creating
the New You -
url: http://dickwrites.homestead.com/files/drooling.html |
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| Brain Injured and Thriving - Edited by Lora Ross with input
from her husband Dave who is thriving after 71 rounds of brain surgery.
The book first tells Dave's story and how he has survived psychologically,
2002 - available at booksellers everywhere. |
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Brain Injury Guide
-- Brain Injury Guide contains recovery information, articles,
and interviews with professionals, survivors, care-givers, and family members.
1996 url:http://members.aol.com/bigkate4/big.htm
email: bigkate4@aol.com |
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Brainlash: Maximize Your Recovery from Mild Brain Injury, by
Gail L. Denton, Ph.D.
Attention Span Books, P. O. Box 788, Niwot, CO 80544-0788 |
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| Callahan Online
-- Cutting-edge cartoons by John Callahan, who has tetraplegia. url:
http://www.callahanonline.com/ |
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| Confronting Traumatic Brain Injury, by William J. Winslade,
MD, PhD, Yale University Press, 1998 |
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| Coping with Mild Traumatic
Brain Injury, Diane Roberts Stoler, EdD and Barbara Albers Hill
- A survivor's how to book on coping with mild brain injury, 1998.
url:
http://www.health-helper.com/ |
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Gifts from the Broken Jar,
by PJ Long, a former psychotherapist who incurred a TBI. EquiLibrium Press,
Inc. 2004
Phone (310) 417-8217 - url: http://www.equipress.com |
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| I am the Central Park Jogger: A Story of Hope and Possibility,
by Trisha E. Meili, who was horribly raped and beaten in 1989 now reveals
her ordeal-and her identity. 2003 |
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| I'll
Carry The Fork, by Kara L. Swanson - A first-person account of
recovering a life after brain injury. October 1999, 205 pages, $16.95 url:http://www.risingstarpress.com/catalog.html#carryfork |
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| Invisible Illnesses and Disabilities, by Sharon E. Smith, -
Rebuilding your life by learning to live with a non-terminal, life-altering
situation. 1999. |
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| Mainstream Magazine
On-Line magazine "for the abled disabled". url: http://www.mainstream-mag.com/ |
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Meditation on Brain Injury,
by Mike Strand - Dream Haven Books
e-mail dream@dreamhavenbooks.com
url: http://www.dreamhavenbooks.com . |
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| Mild Traumatic Brain Injury: A Survivor's Handbook, by Robin
Murphy Davis - 28-page, non-technical guide to dealing with and overcoming
MTBI. |
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| Memory Book - is
a free, 15 page booklet you can read on screen or print off. It is written
by Paul Whitby, Chartered Clinical Psychologist - url: http://www.memorybook.co.uk/ |
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New Mobility Magazine
-- For more than 10 years, New Mobility has been the eading magazine dedicated
to Disability Culture and Lifestyle. Written by and for wheelchair users,
New Mobility provides a forum for haring life experience. For learning
what really works in daily life. For networking and becoming part of a
community. Published by: Telephone: 215- 675-9133
Fax: 215-675-9376 -- url: NewMobility.com |
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| Objects In Mirror
are Closer Than They Appear - by Sol Mogerman, Tells the story
of his accident and recovery from brain injury in a direct personal manner
that draws the reader into the experience. This story highlights
the loss of his self-image as the most devastating outcome of his injury.
People with Disabilities Press url: http://www.youwilldreamnewdreams.com/ |
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Over My head, by
Claudia L. Osborn - A doctor's own story of head injury from the inside
looking out, 1998.
url: http://claudiaosborn.com |
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| The Poem Book: Reflections of
a Brain Injury Survivor -- by Dan Windheim - url: http://www.tbilife.com |
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Family Publications
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| Coming Home: Discharge Manual for Families of Persons with a
Brain Injury, by Dana S. DeBoskey, Ph.D., Ed., HDI Publishers, P.
O. Box 131401, Houston TX 77219, Telephone: 800-321-7037 |
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| Daño cerebral: Guía para familares y cuidadores,
by José León-Carrión, HDI Publishers, P. O. Box 131401,
Houston TX 77219, Telephone: 800-321-7037 |
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| Educating Families: A Guide to Medical, Cognitive & Social Issues,
by D. DeBoskey, J. Hecht and C. Calub, Aspen Publishers, Inc., 200 Orchard
Ridge Drive, Gaithersburg MD 20878 |
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| The Gorp's Gift
- 4324 E. McDonald Dr., Paradise Valley, AZ 85253 - Created in 1996
by
Sherri Chessen, a former Romper Room teacher on TV, writer and mother of
six and by artist Dale Duncan Johnson, a graduate of the Art Center of
Design in California, because of their concern about violence that involves
children. Telephone:: 602-952-2774; Fax: 602-954-2007 - email:
gorp2@earthlink.net
url:
http://www.thegorp.com/ |
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| Pediatric Brain Injury: The Case of the Very Young Child, by
C. Sellars, C. Vegter and S. Ellerbusch, HDI Publishers, P. O. Box 131401,
Houston TX 77219 |
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| Sexuality and the Person with TBI: A Guide for Families, by
Ernest Griffith and Sally Lemberg, HDI Publishers,P. O. Box 131401, Houston
TX 77219, Telephone: 800-321-7037 |
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Sexuality After Brain Injury,
by David Strauss, Ph.D., 2002, Corrects myths about sexuality among persons
with disabilities. Identifies how changes in inhibition, communication,
physical abilities and cognition after brain injury can affect sexuality.
Gives strategies for caregivers and family members on responding to sexual
behaviors. Describes how to teach sexual skills and train staff about sexuality.
url: http://www.lapublishing.com/ |
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| Spanish Language titles available from LA publishing.
http://www.lapublishing.com |
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| Susan's Dad: A Child's Story of Head Injury, by Leif E. Leaf,
Ph.D., Meadowbrook Rehabilitation Group, 2200 Powell Street, Suite
800, Emeryville CA 94608 |
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Teaching Your Child The Language of Social Success, by M. Duke
PhD, S. Nowicki PhD, E. Martin MEd, (Excellent resource for any-aged survivor
having trouble with non-verbal social skills)
Peachtree Publishers, Ltd., 494 Armour Circle NE, Atlanta GA 30324 |
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| The Never Ending Journey, and The Never Ending Journey Continues,
and The Never Ending Journey Begins, by Dayla Maisey --
Three family, self help books. P.O. Box 569, Okotoks, Alberta,
Canada TOL 1T0, Telephone 403-270-3001 email:
journey@cadvision,.com |
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| Tools for Living Workbook -
by J. Lynne Mann, Psychologist and Exe Director, BC Rehabilitation and
Recovery Centre- Instructional aids geared to helping those para-professionals
and core skills workers whom we professionals often interact with-and wish
we could assist. url: http://www.bcrrc.com/ |
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| When
a Parent has a brain injury - http://www.lapublishing.com |
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| When
your teenager is injured - http://www.lapublishing.com |
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| When
your child is technology-assisted - http://www.lapublishing.com |
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| Special Child Magazine
-- A free online publication for parents and caregivers of children with
special needs. Features include stories from their readers, informative
articles, a family advice column, a fully interactive bulletin board service,
and much, much more. url: http://www.specialchild.com |
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Educational
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A
Manual for Managing Special Education for Students with Brain Injury
- url: http://www.lapublishing.com/ |
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Access
To Higher Education For Students With Disabilities --
url: http://codi.buffalo.edu/graph_based/.legal.cases/.higher.ed |
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Breaking
the Barriers: A Guidebook of Strategies - Strategies for Enhancing
Career Mobility, which reviews and analyzes the Advancing Women’s Leadership
project of ACE’s Office of Women in Higher Education.
url: http://www.acenet.edu/bookstore/index.cfm?pubID=243 |
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Kansas Board
of Education TBI Project - url: http://www.soe.ku.edu/sped/disabilities.html |
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Financial
Aid for Students with Disabilities (1999) - This resource paper
guides the student with a disability through the maze of funding options
available to help pay for postsecondary study. In addition to providing
an overview of federal and state-based financial aid sources, the paper
includes a listing of private, disability-related scholarships, as well
as detailed references of resources in print and on the Internet. First
copy is FREE; contact the HEATH Resource Center for pricing on bulk orders.-url:
http://www.acenet.edu/bookstore/home.html#sd |
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How to Choose
a College: Guide for the Student with a Disability (1997)
This guide offers the student with a disability an organized approach to
deciding what college to attend. The booklet emphasizes the importance
of considering not only the strength or breadth of disability support services
available, but also the academic goals and personal preferences and interests
of the applicant. First copy is FREE; contact
the HEATH Resource Center for pricing on bulk orders.
-- url: http://www.acenet.edu/bookstore/home.html#sd |
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Getting Ready for College: Advising
High School Students with Learning Disabilities (1995) This
resource paper offers guidance to the student with a learning disability
who is considering postsecondary study. Topics discussed include an overview
of pertinent laws, changes in responsibility for service delivery between
high school and college, suggestions to facilitate transition planning
and tips for handling the college application process. First
copy is FREE; contact the HEATH Resource Center for pricing on bulk orders.-
url: http://www.heath.gwu.edu/ |
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For additional resources
see our Little Red School
House Page.
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Emergency Medical & General Interest
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When Seconds Count - http://www.emhi.com
- an Emergency Medical Treatment Handbook, published by Emergency
Medical Handbooks International |
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The Guidelines --
A coma protocol called the Guidelines -- http://www.braintrauma.org/ |
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The Alternative Medicine Ratings Guide, by
Steven Bratman, M.D - " If you really want to know which alternative therapies
work--and which don't--this book is a must." |
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How to Make Insurance Companies Pay Your Claims
and What to Do If They Don't - by William M. Shernoff, Ralph
Nader, Ruth Chew -- Step-by-step guidance in making a claim and collecting
from the insurance companies that refuse to pay legitimate claims. |
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See our: A
Few Good Lawyers page url: http://www.headinjury.com/legalserv.htm
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Neurosurgery, Neuropsychology
& Neuro-optmology Publications
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Brain Injury Biomechanics,
Dr Catalin Obreja , NTCP@ 211 Rue Robespierre, 93 170 Bagnolet; France
-- tel/fax: 33 (0)1 48 58 82 59, url: http://www.neurostaff.org
- June 2000 |
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Rehabilitation of the Adult
and Child with Traumatic Brain Injury, 3rd Ed. - Kessler
Institute for Rehabilitation and Research - Edited
by Mitchell Rosenthal, PhD, Ernest R.Griffith, MD, Jeffrey S. Kreutzer,
Ph.D., and Brian Pentland, BSc, MB, ChB, FRCP, FRCSLT, includes 33 chapters
from a team of 70 experts in the field of traumatic brain injury. |
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Mild Head Injury, by Philip Wrightson and Dorothy Gronwall.
Oxford Press, 1999: |
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Neuro-Optometric
Rehabilitation, by William V. Padula, OD
An indepth study of the relationship between head injury and vision disorders.
For more information: contact the Optometric Extension Program, 1921
East Carnegie Ave Ste 3-L, Santa Ana, CA 92705. Telephone: 714-250-8070;
fax:
714-250-8157 |
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Neurosurgery
On-Call - The
American Association of Neurological Surgeons
Presents hot topics, an outcomes database, bulletin boards, clinical topics,
marketplace information, and interesting graphics. Some features are reserved
exclusively for members of the AANS, CNS, and Journal subscribers. In order
to access these sections, you are required to have a user name and
password.
Non-members have the opportunity to access the public pages.
http://www.neurosurgery.org/ |
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Brain and Mind
- Silvia
Helena Cardoso, Ph.D.
Brain and Mind is an electronic magazine published quarterly with the purpose
of presenting knowledge about Neuroscience. By using a clear and accessible
language the articles are easy to understand, yet still prove interesting.
The graphics and formatting of the page are also nicely composed.
http://www.epub.org.br/cm/ |
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Neurosurgery
- University
of North Carolina - Internet
Grand Rounds -
Neurosurgical
Anatomy
This site is designed to serve as a
source of information for Neurosurgery at UNC, and as a repository of information
for Neurosurgical education. This site presents general information about
the division, but does it in such a way that it is informative and educational.
http://sunsite.unc.edu/Neuro/ |
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Child
Neuro - University
of Wisconsin-Madison
A modest listing of Internet resources concerning issues in Child Neurology,
both for professionals and patients. Categories include academy sites,
disease information, mailing lists, clinical service information, and research
information. A brief description is provided for selected resources. Updated
frequently.
http://www.waisman.wisc.edu/child-neuro/ |
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Neuropsychology
Page - Medical
College of Georgia
This site is intended to provide information of interest to the practicing
clinical neuropsychologist. Although it is supported by the Department
of Neurology at the Medical College of Georgia, contributions from all
neuropsychologists and related specialties are welcome. Highlights include
Wada Testing, assessment information, clinical case examples, and medicolegal
applications. Infrequently updated.
http://www.neuro.mcg.edu/npsy.htm |
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Mind/Brain
Resources - Virginia
Tech
A
list of resources that researchers in cognitive science or philosophy of
mind might find useful. This page is designed for Philosophy of Mind and
Philosophical Psychopathology students at Virginia Tech, but anyone is
welcome to use it.
http://mind.phil.vt.edu/www/mind.html |
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Pediatric
Neurosurgery - Columbia-Presbyterian
Medical Center
This site is dedicated to providing families with information in "common
English" regarding various aspects of the field of pediatric neurosurgery.
Topics include Hydrocephalus, Spina Bifida, Chiari Malformation, Tethered
Spinal Cord, Syringohydromyelia, Craniofacial Anomalies, Tumors and Trauma.
Few outside resources are provided.
http://cpmcnet.columbia.edu/dept/nsg/PNS/ |
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Sourcebook
on Aphasia - Created for patients who have decided to make education
and Internet-based research an integral part of the treatment process.
Although it gives information useful to doctors, caregivers and other health
professionals, it also tells patients where and how to look for information
covering virtually all topics related to Aphasia, from the essentials to
the most advanced areas of research.
url: http://www.icongrouponline.com/health/Aphasia.html |
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Brain
Injury Articles - Medical Journals
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"Forever Different: Experiences of Living with a Sibling who
has a Traumatic Brain Injury." D. J. Gill and D. L. Wells.
Rehabilitation Nursing, 25 (3): 48-53. |
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Sosin DM, Sniezek JE, Thurman DJ., Incidence of mild and moderate
brain injury in the United States, 1991. Brain Injury,
1996; 10(1):47-54. |
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Centers for Disease Control and Prevention. Traumatic brain injury--Colorado,
Missouri, Oklahoma, and Utah, 1990-1993. MMWR, 1997; 46(1):8-11. |
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Sosin DM, Sniezek JE, Waxweiler RJ. Trends in death associated
with traumatic brain injury, 1979 through 1992: success and failure.
JAMA, 1995; 273:1778-1780. |
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U.S. Department of Health and Human Services. Interagency Head
Injury Task Force Report. Washington, DC: U.S. department of Health
and Human Services, 1989. |
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Aitken Brain Trauma Foundation, Guidelines for the Management
of Severe Head Injury, NY 1995. |
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National Academy of Sciences/National Research Council: Accidental
Death and Disability: The Neglected Disease of Modern Society.
Washington, DC, National Academy of Sciences, 1966. |
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Baxt WG, Moody P: The impact of advanced prehospital care on
the mortality of severely brain-injured patients. J Trauma 27:365-369,
1987. |
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United States Department of Transportation - National Highway Traffic
and Safety Administration (NHTSA), 1998. |
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Clawson J: Telephone treatment protocols. J Emerg Med
Serv:11:43-47, 1986. |
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The Journal of Emergency Care, Rescue and Transportation: State
and Province Survey 1997. Volume 26, Number 12, December 1997. |
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Eichorn J: Prevention of intraoperative anesthesia and related
severe injury through safety monitoring. Anesthesiology:70:573-577,
1989. |
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Klauber, M.R., et al. The Epidemiology of Head Injury: A Prospective
Study of an Entire Community - San Diego County, California, 1978.
Amer J of Epidemiology: 113, No. 5, 500-509, 1981. |
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AMA: Office of Quality Insurance & Health Care Organizations Attributes
to Guideline Development of Practice Parameters. AMA; Chicago,
IL, 1990. |
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Central Autonomic Dysfunction Following Acquired Brain Injury in
Children -- by Linda E. Krach, MD; Robert L. Kriel, MD; William F.
Morris, DO; Bonnie L. Warhol, MD; and Michael G. Luxenberg, PhD Published
in J Neuro Rehab, Vol 7, No. 1 © 1997 Demos Vermande |
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Late Improvements in Mobility After Acquired Brain Injuries in Children
-- by Paula J. Vander Schaaf, OTR; Robert L. Kriel, MD; Linda E. Krach,
MD; and Michael G. Luxenberg, PhD Published in Pediatric Neurology
Vol. 16 No. 4 pages 306–310 |
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Traumatic Brain and Spinal Cord Injuries in Children -- by Robert
L. Kriel, MD and Linda E. Krach, MD, Published in Current Management
in Child Neurology, pp 302–307 -- 1999 Bernard L. Maria |
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also see our: Scientific
Journals Page
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brain@headinjury.com
