Copyright
© 1998 Head Injury Hotline
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Spinal Cord
Injury Links
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From
The Ashes:
A Brain Injury Survivor's Guide
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Injury
is the number one killer of young Americans. Brain and spinal cord injuries
cause permanent disability for hundreds of thousands of people each year.
Especially troubling is that many of these injuries could have been prevented |
In
memory of
Janet
L. McLaughlin
1954
- 2003
Santa
Anna, CA
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Thank those
who have helped you.
Donate |
| Your
logo here gives
potential clients instant "point & click" access to your corporate
message |
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Organizations
& Agencies
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| American
Chronic Pain Association -- P.O.
Box 850, Rocklin, CA. 95677 - Telephone: 916-632-0922. Information,
referrals and support groups - url: http://www.theacpa.org |
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| American Paralysis Association (APA) -- 500
Morris Ave., Springfield, NJ. 07081. Telephone: 800-225-0292
Fax:
207-912-8433 |
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| American
Syringomyelia Alliance Project (ASAP) -- P.O. Box 1586,
Longview, TX. 75606-1586 Telephones:
800-272-7282;
903-236-7079 - FAX: 903-757-7456 - url: http://www.asap4sm.com |
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| American
Spinal Cord Injury Association (ASIA) -- 345 E. Superior
Room 1436, Chicago IL. 60611 Telephone: 312-908-6207
- Publication ASIA Bulletin - url: http://www.asia-spinalinjury.org |
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British Brain & Spine Foundation
(BBSF) - 7 Winchester House, Kennington Park Cranmer
Road London SW9 6EJ England -
Tel: +44 (0)171 793 5900 - Fax: +44 (0)171 793
5939 - Brain and Spine Helpline (within UK): 0800 328 5758 -
Web: http://www.bbsf.org.ukE-Mail:info@bbsf.org.uk |
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Canadian Paraplegic
Association - 320-1101 Prince of Wales Dr, Ottawa, Ontario,
K2C 3W7 - Telephone: 613-723-1033 - Fosters and promotes the independence,
self-reliance and all participation of Canadians with spinal cord injury
and other significant mobility disabilities through counseling, information
and advocacy services.
url: http://www.canparaplegic.org/index.html --
email: eboyd@canparaplegic.org |
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Casa Colina Centers for Rehabilitation
- 255
East Bonita Ave, Pomona, CA 91769-6001-
Telephone:
909-596 7733 ext 2221,
Toll-free: 800-926-5462 - FAX 909-593 0153
Email: rehab@casacolina.org -- url: http://www.casacolina.org
Featuring: Outdoor Adventures |
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Center for Research on Women
with Disabilities (CROWD) - Baylor College of Medicine,
Dept of Physical Medicine & Rehab, 3440 Richmond Ave, Ste B, Houston,
TX 77046 Telephone: 713-960-0505
A research center that focuses on issues related to health, aging,
civil rights, abuse and independent living. CROWD's purpose is to promote,
develop, and disseminate information to expand the life choices of women
with disabilities. Researchers develop and evaluate models for interventions
to address specific problems effecting women with disabilities. url:
http://www.bcm.tmc.edu/crowd/ |
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| Christopher Reeve Paralysis Foundation
- http://www.apacure.com -- Telephone: 800-225-0292. |
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The Disability Resource
-- Provides information and resources for every kind of disability. There
are thousands of resources in our Resources database, hundreds of titles
in our Bookstore, a chat room, discussion board, and we even sell wheelchair
gloves and multitools for when you are in a jam. -
url: http://www.disabilityresource.com |
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Eastern Paralyzed Veterans Association
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75-20 Astoria Blvd., Jackson Heights, NY 11370
Telephone: 718-803-0414 - The Eastern Paralyzed Non-profit
organization dedicated to serving the needs of spinal cord injured veteran,.
url:
http://www.epva.org |
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Spinal Cord Injury Resources
continued
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Federal Resource Center
for Women with Disabilities -- The Office of Women's Health in
the Department of Health and Human Services (DHHS) - federal resource center
for women with disabilities in the National Women's Health Information
Center (NWHIC). url: http://www.4woman.gov/wwd/index.htm |
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Kent Waldrep National Paralysis
Foundation - 16415 Addison Road, Suite 550, Dallas, Texas 75248
Telephone: 800-925-2873, 214-387-2873 -- The purpose
of the Foundation is to facilitate a cure for paralysis caused by injury
to the spinal cord and/or brain. The Foundation implements an annual work
plan to address the needs related to its four programs: medical research,
public education, community services, and professional education. url:
http://www.spinalvictory.org/-
email:
npf@compugen.net |
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Landmine Survivors Network
-- A worldwide network to link landmine survivors with the resources they
need to recover, heal, and resume their role as participating and contributing
members of their society. Landmine Survivors Network -- 1420 K Street
NW, #650 Washington, DC 20005
Telephone: 202 464 0007 -- Fax: 202 464 0011 -- url:
http://www.landminesurvivors.org/ |
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MEDCON -- The University of Washington
offers a 24-hour, toll-free consultation and referral service for health
care professionals and their clients with spinal cord injury. To contact
MEDCON, dial 206-543-5300 if you live in the Seattle area
or 800-326-5300 if you are calling long distance. An operator will
direct your call to the physician or other health care professional
best able to answer your question. |
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Mental Health Net -- Self-help
resources including symptoms and treatments. Many of these resources are
targeted at the lay person, but professionals may find them useful as well.
URL:
http://mentalhelp.net/ |
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National Association for Home Care
-- 228 Seventh St SW, Washington, DC 20003 - Telephone:
202-547-7424 - An association for home care and hospice-related information.
Provides information on state associations, publications, legislation,
regulations, and advocacy. url: http://www.nahc.org/ |
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National
Empowerment Center -- url: gopher://ftp.std.com/11/nonprofits/empowerment-ctr |
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National Rehabilitation Information
Center -- url: http://www.cais.com |
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National Spinal Cord Injury
Association (NSCIA) -- 8300 Colesville Rd., ste 551, Silver Spring,
MD 20910 Telephones: 800-962-9629; Fax: 301-588-9414 (11:30
am - 5:30 pm EST)
url: http://www.spinalcord.org - e-mail: nscia2@aol.com |
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National
Spinal Cord Injury Hotline -- 2200 Kernan Dr., Baltimore,
MD 21207 Telephone: 1-800-526-3456 (9 a.m. to 5 p.m.
EST) e-mail: scihotline@aol.com |
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Paralysis Society of America
-- PSA is a national organization whose members are people with spinal
cord injury or disease, their family members and caregivers, health-care
professionals, and others with an interest in the disciplines spinal cord
medicine and paralysis. url: http://www.psa.org |
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SCI Info Pages
- A free resource for those with a spinal cord injury, or other disabling
injury or disease of the spine. url: http://www.sci-info-pages.com/ |
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Spinal Cord Injury Center -- Seattle,
Wa Telephone: 206-543-7374 |
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Spinal Injuries Association
-- 76 St.James's Lane, Muswell Hill, London N10 3DF England
Telephone: 02-084-442-121 -- Fax: 02-084-443-761
-- Freephone Information Line 0800 980 0501
email: sia@spinal.co.uk -- url:
http://www.spinal.co.uk |
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Spinal
Disorders and Their Treatment (New York University)
Information about treatment of different types of back pain. url:
http://mcns10.med.nyu.edu/spine/spine_main.html |
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The TBI & SCI Projects--
Santa
Clara Valley Medical Center -- url: http://www.tbi-sci.org
Email: tbird@tbi-sci.org |
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also see our : Human
& Professional Services - page - url:
http://www.headinjury.com/resources.htm#human |
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also see our : Post
Traumatic Stress Disorders page - url: http://www.headinjury.com/faqptsd.htm |
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Advocacy
Groups, Support Groups, Mailing Lists
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Adapt -- Disability rights
activists organization. url: http://www.adapt.org |
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Quadriplegic
(Tetraplegic) Discussion Group: This Internet mailing
list, called QUAD-LIST, is a forum for quadriplegics (tetraplegics) to
communicate with one another. To subscribe to the list, follow the instructions
found on Jim Lubin's QUAD-LIST web page.
url: http://www.eskimo.com/~jlubin/disabled/quadlist.htm |
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SCI Mailing List:
An Internet mailing list on spinal cord injury, called SCIPIN-L List. To
join it, send a
message to listserv@health.state.ny.us with only the words "subscribe
SCIPIN-L" in the body of the message. After you join, send
all messages to the list to scipin-l@health.state.ny.us, NOT to
the address below. listserv@health.state.ny.us |
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Sexuality
-- Links to information and resources |
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Spinal Cord Injury Support Network
-- Blain, Wa Telephone: 360-332-937 |
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Support GroupsTBI--
Links to and information on Traumatic Brain Injury Support Groups worldwide |
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The TBI & SCI Projects
-- Santa Clara Valley Medical Center -- url: http://www.tbi-sci.org
Email: tbird@tbi-sci.org |
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Vent
Users Mailing List: This Internet mailing list is a
forum where ventilator users can communicate with one another. To join,
fill out the online form at the website of list owner Jim Lubin.
url: http://www.eskimo.com/~jlubin/disabled/ventuser.htm |
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wheelchairmobility.com
-- contains information about spinal cord injury and wheelchair life, links
to and resources and a "how-to" video on advanced wheelchair mobility.
url: http://www.wheelchairmobility.com |
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World Association of Persons with Disabilities
- Voices of positive ability, advances the interests of persons with
disAbilities at national, state, local and home levels. 4503 Sunnyview
Dr., Ste 1121; PO Box 14111; Oklahoma City, OK 73113; Telephone:
405-672-4440; Fax: 405-672-4441 url: http://wapd.org |
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also see our : Advocacy
and Resource Organizations - page - url:http://www.headinjury.com/resources.htm#advocacy |
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also see our : Addiction
Services and Resources - page - url:
http://www.headinjury.com/resources.htm#addiction |
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General
Resources
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Article: ADAPTED
VEHICLES: Paving the Road to Independence [MDA Quest site]
-- by by Lori Hungate -- sections: "Driver Training", "Mistakes to Avoid",
"Taking the Sting out of Conversion Price", "Inside Controls", and "Resources".
url:
http://www.mdausa.org/publications/Quest/q41vehicle.html |
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Anxiety Disorders Association of America
-- 11900 Parklawn DR #100, Rockville, MD 20852-2624
Telephone: 301-231-9350 -- email: AnxDis@adaa.org - url:
http://www.adaa.org |
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Assistive Technologies Alliance
-- ATRC/University of Washington -- P.O. Box 357920, Seattle, WA 98195-7920
--Telephone: 206-685-6836 (V/TTY), 800-214-8731 V/TTY.
Offers programs, electronic networking and information, forums, and
an exchange for AT devices. url:http://wata.org/ |
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Assistive Technology Industry Association
-- links and information.Telephone: 877-687-2842 or 847-869-1282
- url: http://www.atia.org (US & Canada) |
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Center for Computer Redistribution,
Inc. -- P.O. Box 70001 Richmond, Virginia 23255 supply free personal
computers to disabled persons. Our goals include and social interaction
for the disabled through participation on the Internet. url:
http://www.freepcs.org/ |
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Center on Positive Behavioral Interventions
and Support -- 5262 University of Oregon, Eugene, OR 97403-5262;
Telephone:
541-346-2505
-- email: pbis@oregon.uoregon.edu;
url: http://www.pbis.org |
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Clearinghouse on Disability Information - Office of Special
Education and Rehabilitative Services
Rm 3132, Switzer Bldg, 330 C Street S.W., Washington, DC 20202-2524
Telephone: 202-205-8241 (Voice/TTY) |
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College Search and Financial
Aid: Search for Colleges, Universities, Scholarships and Financial
Aid Online Search for colleges, universities, scholarships, and financial
aid with a free online service providing profiles of colleges & universities
in the US and Canada, virtual tours of many schools, electronic applications,
financial info, career information and planning tools, ask the Experts
and more.
url: http://www.collegeview.com/ |
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Driver Rehab Programs - Links
to and information on driver rehab programs url: http://wata.org/ |
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Disabled and Alone/Life
Services for the Handicapped, Inc -- 352 Park Ave S. Ste
703, NY 10010 Telephone: 212-532-6740; 800-995-0066 -- url: http://www.disabledandalone.org/ |
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Disabilityclaims.com
-- Created as a resource for disability legal issues it attempts to address
the legal concerns of disabled individuals.It also provides many common
sense do’s and don’ts in the disability benefit application process. Telephone:
212-297-0700;
Fax:
212-297-0730
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email: http://www.disabilityclaims.com/ - url: riemer@tiac.net |
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Disability
Resource Directory, Manhattan, Kansas USA -- url:http://www.kansas.net/~cbaslock/index.html |
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Domestic Violence
Hotline -- (800) 799-SAFE (799-7233) to find out about domestic
violence shelters and programs in your area. url: http://www.usdoj.gov/vawo/newhotline.htm |
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Family Violence Prevention Fund
(FVPF) -- works to end domestic violence and help women and children
whose lives are devastated by abuse, because every person has the right
to live in a home free of violence. url: http://www.fvpf.org/ |
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Mental Health Advocacy Project -- 111
W. Saint John St., San Jose, CA 95113 315
Telephone: 408-294-9730
FAX: 408-293-0106 |
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Mental Health Net -- Self-help
resources including symptoms and treatments. Many of these resources are
targeted at the lay person, but professionals may find them useful as well.
URL:
http://mentalhelp.net/ |
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Planning and Execution Assistant
andTrainer (PEAT) -- 650 Castro St., Ste. 120-197, Mountain View,
CA 94041- Telephone: 650-494-2002; Fax: 650-493-2002 - Attention
Control Systems, Inc.
email: prefrontal@aol.com - url: http://www.brainaid.com |
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Presidental
Taskforce on Employment of Adults with Disabilities -- Department
of Labor 1331 F Street, NW, Washington, DC 20004-1107 --
Telephone:
202-376-6200 -
url: http://www.dol.gov/_sec/programs/ptfead/main.htm |
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Project Walk -
is a two year exercise recovery program for individuals with certain spinal
cord injuries.
url: http://www.projectwalk.org/ |
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Rehabilitation International
-- A federation of national and international organizations and agencies
working for the prevention of disability, the rehabilitation of people
with disabilities, and the equalization of opportunities within society
on behalf of persons with disabilities and their families throughout the
world. url: http://www.rehab-international.org |
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Senior Wheels USA -- Provides free,
power wheelchairs for seniors who are permanently disabled and unable to
self-propel a manual wheelchair, and who are not covered by an HMO. 800-246-6010 |
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also see our : Health
& Government Resources - page - url:http://www.headinjury.com/health.htm |
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also see our : TBI
Resources - page - url: http://www.headinjury.com/resources.htm |
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Publications
- New Media
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SpineWire.com -- Online community
for Spinal Cord Iinjury & Traumatic Brain Iinjury news, resources and
culture. url: http://www.cando.com |
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Accent on Living -- $10 year (4 issues) -- PO Box 700, Bloomington,
IL 61702 --Telephone: 800-787-8444 -- |
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Disability Now
-- Disability news and information. The UK's leading disability publication.
url: http://www.disabilitynow.org.uk. |
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Disability Rag -- P.O. Box 1, Louisville, KY. 40201 -- Telephone:
502-459-5343
6 issues per year -- $17.50 per year |
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MainstreamMagazine
-- Mainstream, Inc. -- url: http://www.mainstream-mag.com/ email:
publisher@mainstream-mag.com, Telephone: 619-234-3138 |
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My Handi-Capable
Reporter - 1065 W. Lomita Blvd. #455, Harbor City, CA 90710-- A
guide to news of medical findings and studies, upcoming events and to restaurants
and other public establishments in Southern California. url:
http://www.geocities.com/MHC_Reporter -- email: mhcr@wgn.net |
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New Mobility's Interactive
Cafe -- Online community for disability news, resources and culture.
url: http://www.newmobility.com/ |
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Paralinks -- An electronic
magazine for people with SCI. - url: http://www.paralinks.net |
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Paraplegia News - Paralyzed Veterans
of America, 801 18th St., NW, Washington, DC 20006. A magazine that
presents news concerning paraplegic and wheelchair living. |
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Ragged Edge Magazine
url: http://www.ragged-edge-mag.com/ |
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SCI Life, NSCIA -- 545 Concord Ave, Ste 29, Cambridge, MA. 02138-1122
-- Telephone: 800-962-9629 Must be a member of NSCIA -- |
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Special Child Magazine
-- A free online publication for parents and caregivers of children with
special needs. Features include stories from their readers, informative
articles, a family advice column, a fully interactive bulletin board service,
and much, much more. url: http://www.specialchild.com |
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Talk Radio -- Host
& Founder, Greg Smith -- This web site is an information center for
his network of live weekly talk shows on Life & Disability airing
in markets across the country.
url: http://www.onarollradio.com |
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also see our : Noteworthy
Publications - page - url:http://www.headinjury.com/linksnpub.htm |
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Sports
& Recreation
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Access to Recreation, Inc.
-- 2509 E. Thousand Oak Blvd. Ste. 430, Thousand Oaks, CA. 91359-5072 Telephone:
800-634-4351 -- url: http://www.accesstr.com; email: dkrebs@gte.net |
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American Rehabilitation Magazine - 4 issues per year $9.00 -
Federal
Rehabilitation Services Admin. -- 330 C St, SW, Washington, DC 20201
-- Telephone: 202-205-8296 url: |
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American Wheelchair
Table Tennis Association -- 23 Parker St, Port Chester NY. 10573
-- Telephone: 914-937-3932 email: johnsonjennifer@yahoo.com |
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Association of Disabled American Golfers -- 7700 E. Arapahoe
Rd. Ste. 350, Englewood, CO 80112 -- Telephone: 303-220-0921 |
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Canadian Wheelchair Basketball Association
--1600 James Naismith Dr., Gloucester, Ontario K1B5N4 -- Telephone:
613-748-5888 - url: http://www.cwba.ca |
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Casa Colina Centers for Rehabilitation
- 255
East Bonita Ave, Pomona, CA 91769-6001- Telephone:
909-596
7733 ext 2221, Toll-free: 800-926-5462 - FAX 909-593 0153
- Email: rehab@casacolina.org --
url: http://www.casacolina.org -- Featuring:
Outdoor Adventures |
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Disabled Sports USA -- 451
Hungerford Dr. Ste100, Rockville, MD. 20850 --
Telephone: 301-217-0960; Fax: 301-217-0968; TDD: 301-217-0963
- url: http://www.dsusa.org/ |
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Eastern Amputee Athletic Association -- 2080 Ennabrock Rd, N.
Bellmore, NY 11710 -- Telephone: 516-826-8340 |
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Human Kinetics Publishers
-- Physical Activity Links -- url: http://www.humankinetics.com/ |
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International Paralympic Committee
-- Adenauerallee 212-214 - 53113 Bonn Germany -
Telephone: +49 (228) 2097-200; Fax: +49 (228) 2097-209
- email: info@paralympic.org
url: http://www.paralympic.org |
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International Stoke Mandeville Wheelchair
Sports Federation (ISMWSF) -- Olympic Village, Guttmann Road, Aylesbury,
Bucks HP21 9PP, UK.-- url: http://www.wsw.org.uk |
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International Wheelchair Aviators
- 1117 Rising Hill Way, Escondido, CA 92029 Telephone:
619-746-5018 - A group of disabled and able bodied individuals
who are interested in flying. The IWA provides handicapped flying information
to those who are interested. IWA publishes a bi-monthly newsletter telling
of current achievements and activities of its members. |
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National Sports Center for the Disabled
-- url: http://www.nscd.org |
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National Wheelchair Basketball Association
-- 2850 North Garey Ave, PO Box 6001 , Pomona, CA. 91769-6001 -- Telephone:
909-596-7733 ext 2211 url: http://www.nwba.org |
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Palaestra - Produced
in cooperation with the Committee on Sports for the Disabled of the United
States Olympic Committee and the Adapted Physical Activity Council of the
American Alliance for Health, Physical Education, Recreation and Dance.
url: http://www.palaestra.com |
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Rick Hansen Centre, Canada
-- url: http://www.per.ualberta.ca/rhc/ |
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Riding for the Disabled Association
Ltd. (Hong Kong) -- url: http://www.rda.org.hk |
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Shake-A-Leg -- Nonprofit
organization offers recreational therapy for people with spinal cord injury
and related nervous system disorders. url:http://www.shakealeg.org/ |
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Special Olympics International
-- url: http://www.specialolympics.org/ |
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Therapeutic
Riding Centers -- url: http://horses.about.com/cs/therapeuticriding/index.htm?once=true& |
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US Cerebral Palsy Athletic Assoc
(USCPAA) -- 200 Harrison Ave, Newport, RI. 02840
Telephone: 401-848-2460 - url: http://www.uscpaa.org/ |
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U.S. Quad Rugby Association
-- 309 Stoney Ford Rd, Holland, PA. 18966
Telephone: 215-504-0445 url: http://www.quadrugby.com |
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U.S. Rowing Association -- 201 S. Capitol Ave Ste 400,
Indianapolis, IN 46225
Telephone: 317-237-5656 -- |
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Wheelchair Sports Worldwide
-- url: http://www.wsw.org.uk |
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also see our : Additional
Listings - page - url: http://www.headinjury.com/resources.htm#fun |
Click
here to Add a Site
|
206-621-8558
