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Encephalitis, Meningitis & Hydrocephalus
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Federal Government Resources:
 
Centers for Disease Control and Prevention - url: http://www.cdc.gov - email:
 
CDC informational page on West Nile Virus
url:  http://www.cdc.gov/ncidod/dvbid/westnile/index.htm
 
National Institute of Neurological Disorders and Stroke
url: http://www.ninds.nih.gov/health_and_medical/disorder_index.htm
 
Professional and Non-profit Organizations:
 
Johns Hopkins Infonet Advocacy links - url:   http://md-jd.info/hopkins.html
 
National Organization For Rare Disorders NORD-RDB - PO Box 8923, New Fairfield, CT 6812-8923 - telephone: 800-999-6673 -email: RN@rarediseases.org - url:http://www.rarediseases.org 
 
The Arc - 500 E. Border St, Ste 300, Arlington TX 76010 - telephone:  817-261-6003 email: thearc@metronet,com -- 
url: http://www.thearc.org
 
FamilyVillage - Waisman Center, University of Wisconsin-Madison, 1500 Highland Ave, Madison, WI 53705-2280 - A global community on the Internet for persons with mental  retardation and other disabilities, their families, and those that provide them services and support.  In their library you  will find diagnosis specific information, contact names, where to go to chat with others, and web sites on each condition. Also includes information on air travel with a disability and service dog information. email: familyvillage@waisman.wisc.edu - 
url: http://www.familyvillage.wisc.edu/
 
KidsHealth.org - Nemours Center for Children's Health Media, The Nemours Foundation, 1600 Rockland Road, Wilmington, DE 19803 - Telephone: 302-651-4046; Fax:  302-651-4077
email: info@KidsHealth.org - url: http://www.kidshealth.org/
 
Encephalitis Support Groups & Listservers:
Encephalitis Support Group -- 44a Market Place - Malton, N, Yorks YO17 7LW, U.K - Telephone: 01 653 699 599 - Fax: 01 653 699 599 - url: http://www.esg.org.uk/ESG/Support/Default.asp - 
email: info@esg.org.uk
 
Encephalitis Support Group --  http://groups.yahoo.com/group/encephgroup
 
Encephalitis Mailing List    Please submit requests to become subscribers to  Listserver@encephalitis.org, in the message please include your name and email address.   Please include other information which might include your home town, etc.  This information will not be published but will better serve you.
 
Encephalitis Mailing List, UK    Please submit requests to become subscribers to majordomo@connect.org.uk, in the message please write: subscribe.  Also include your name and email address.
 
Neurology Web-Forum
 
Hydrocephalus: 
 
Hydrocephalus Foundation, Inc, 910 Rear Broadway, Rt. 1,  Saugus, MA 01906 -  Support, educational resources and networking opportunities to patients and families affected by hydrocephalus. Also promotes related research and facilitates the training of healthcare professionals to improve patient outcome. Telephone: 781-942-1161- 
email: HyFII@netscape.netproviding
url: http://www.hydrocephalus.org/
 
National Hydrocephalus Foundation  -- 12424 Centralia Rd, Lakewood CA 90715-1623  url: http://nhfonline.org/
Hydrocephalus Clinical Research Network -- Mission to improve outcomes for those living with hydrocephalus. HCRN has five centers: Seattle, Primary Children’s Hospital in Utah, SickKids in Toronto, Texas Chidlren’s Hospital in Houston and Children’s Hospital in Birmingham. url: http://www.hcrn.org
http://hydrocephalussupportgroup.blogspot.com  Hydrocephalus Support Group, Inc., based in Seattle/Olympia Washington.  We have been offering moral support and information to families, friends, caregivers & those (of all ages) living with the condition of hydrocephalus. 
 
Meningitis: 
 
Meningitis Foundation of Ameica -- Provides information on both Meningitis and Encephalitis -- 7155 Shadeland Station Ste 190, Indianapolis, Indiana 46256-3922 - information and support Telephone: 800-668-1129, 317-595-6383; 
url: http://www.musa.org
 
Meningitis Research of Canada -- grassroots initiative born
from a mother's tragic loss of her son, Michael Longo
PO Box 28015 R.P.O., Parkdale, Waterloo, Ontario N2L 6J8; 
Telephone: 519 746-8306; Toll-free: 800-643-1303
email - fund@meningitis.ca 
url: http://www.meningitis.ca/
 
 

 

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