| Federal Government Resources: |
| |
| Centers for Disease Control and Prevention
- url: http://www.cdc.gov - email: |
| |
CDC
informational page on West Nile Virus -
url: http://www.cdc.gov/ncidod/dvbid/westnile/index.htm |
| |
National
Institute of Neurological Disorders and Stroke
url: http://www.ninds.nih.gov/health_and_medical/disorder_index.htm |
| |
| Professional and Non-profit Organizations: |
| |
| Johns Hopkins Infonet Advocacy
links - url: http://md-jd.info/hopkins.html |
| |
| National Organization For
Rare Disorders NORD-RDB - PO Box 8923, New Fairfield, CT 6812-8923
-
telephone: 800-999-6673 -email: RN@rarediseases.org - url:http://www.rarediseases.org |
| |
The Arc - 500 E. Border
St, Ste 300, Arlington TX 76010 - telephone: 817-261-6003
email:
thearc@metronet,com --
url: http://www.thearc.org |
| |
FamilyVillage
- Waisman Center, University of Wisconsin-Madison, 1500 Highland Ave, Madison,
WI 53705-2280 - A global community on the Internet for persons with mental
retardation and other disabilities, their families, and those that provide
them services and support. In their library you will find diagnosis
specific information, contact names, where to go to chat with others, and
web sites on each condition. Also includes information on air travel with
a disability and service dog information. email: familyvillage@waisman.wisc.edu
-
url: http://www.familyvillage.wisc.edu/ |
| |
KidsHealth.org - Nemours
Center for Children's Health Media, The Nemours Foundation, 1600 Rockland
Road, Wilmington, DE 19803 - Telephone: 302-651-4046;
Fax:
302-651-4077
email: info@KidsHealth.org - url: http://www.kidshealth.org/ |
| |
| Encephalitis Support Groups
& Listservers: |
|
Encephalitis
Support Group -- 44a Market Place - Malton, N, Yorks YO17 7LW,
U.K - Telephone: 01 653 699 599 - Fax: 01 653 699 599 - url:
http://www.esg.org.uk/ESG/Support/Default.asp -
email: info@esg.org.uk |
| |
| Encephalitis
Support Group -- http://groups.yahoo.com/group/encephgroup |
| |
| Encephalitis Mailing
List Please submit requests to become subscribers
to Listserver@encephalitis.org, in the message please include your
name and email address. Please include other information which
might include your home town, etc. This information will not be published
but will better serve you. |
| |
| Encephalitis Mailing
List, UK Please submit requests to become subscribers
to majordomo@connect.org.uk, in the message please write: subscribe.
Also include your name and email address. |
| |
| Neurology Web-Forum |
| |
| Hydrocephalus: |
| |
Hydrocephalus Foundation,
Inc, 910 Rear Broadway, Rt. 1, Saugus, MA 01906 - Support,
educational resources and networking opportunities to patients and families
affected by hydrocephalus. Also promotes related research and facilitates
the training of healthcare professionals to improve patient outcome. Telephone:
781-942-1161-
email: HyFII@netscape.netproviding
url: http://www.hydrocephalus.org/ |
| |
| National Hydrocephalus Foundation
-- 12424 Centralia Rd, Lakewood CA 90715-1623 url: http://nhfonline.org/ |
|
| Hydrocephalus Clinical Research Network
-- Mission to improve outcomes for those living with hydrocephalus. HCRN
has five centers: Seattle, Primary Children’s Hospital in Utah, SickKids
in Toronto, Texas Chidlren’s Hospital in Houston and Children’s Hospital
in Birmingham. url: http://www.hcrn.org |
| |
| Meningitis: |
| |
Meningitis Foundation of Ameica
-- Provides information on both Meningitis and Encephalitis -- 7155 Shadeland
Station Ste 190, Indianapolis, Indiana 46256-3922 - information and support
Telephone:
800-668-1129, 317-595-6383;
url: http://www.musa.org |
| |
Meningitis Research of Canada
-- grassroots initiative born
from a mother's tragic loss of her son, Michael Longo
PO Box 28015 R.P.O., Parkdale, Waterloo, Ontario N2L 6J8;
Telephone: 519 746-8306; Toll-free: 800-643-1303
email - fund@meningitis.ca
url: http://www.meningitis.ca/ |
| |
brain@headinjury.com
