| Federal Government Resources: |
| |
| Centers for Disease Control and Prevention
- url: http://www.cdc.gov - email: |
| |
CDC
informational page on West Nile Virus -
url: http://www.cdc.gov/ncidod/dvbid/westnile/index.htm |
| |
National
Institute of Neurological Disorders and Stroke
url: http://www.ninds.nih.gov/health_and_medical/disorder_index.htm |
| |
| Professional and Non-profit Organizations: |
| |
Institute for Brain
and Immune Disorders -- 914 South 8th St, Minneapolis, MN 55404
Telephone: 612-337-8953 - Fax: 612-347-3915 --
url:
http://www.winternet.com/~briminst
email: igara001@tc.umn.edu |
| |
| Johns Hopkins
Infonet Advocacy links - url: http://infonet.welch.jhu.edu/advocacy.html |
| |
| National Organization For
Rare Disorders NORD-RDB - PO Box 8923, New Fairfield, CT 6812-8923
-
telephone: 800-999-6673 -email: RN@rarediseases.org - url:http://www.rarediseases.org |
| |
The Arc - 500 E. Border St,
Ste 300, Arlington TX 76010 - telephone: 817-261-6003 email:
thearc@metronet,com --
url: http://thearc.org |
| |
FamilyVillage
- Waisman Center, University of Wisconsin-Madison, 1500 Highland Ave, Madison,
WI 53705-2280 - A global community on the Internet for persons with mental
retardation and other disabilities, their families, and those that provide
them services and support. In their library you will find diagnosis
specific information, contact names, where to go to chat with others, and
web sites on each condition. Also includes information on air travel with
a disability and service dog information. email: familyvillage@waisman.wisc.edu
-
url: http://www.familyvillage.wisc.edu/ |
| |
KidsHealth.org - Nemours
Center for Children's Health Media, The Nemours Foundation, 1600 Rockland
Road, Wilmington, DE 19803 - Telephone: 302-651-4046;
Fax:
302-651-4077
email: info@KidsHealth.org - url: http://www.kidshealth.org/ |
| |
| Encephalitis Support Groups
& Listservers: |
|
Encephalitis Global
- Survivors, caregivers and loved ones sharing information and support
url: http://www.encephalitisglobal.com/ |
| |
Encephalitis
Support Group -- 44a Market Place - Malton, N, Yorks YO17 7LW,
U.K - Telephone: 01 653 699 599 - Fax: 01 653 699 599 - url:
http://www.esg.org.uk/ESG/Support/Default.asp -
email: info@esg.org.uk |
| |
| Encephalitis
Support Group -- http://groups.yahoo.com/group/encephgroup |
|
| Encephalitis
Stories - http://members.aol.com/danielsown/encephalitis/ |
| |
| Encephalitis Mailing
List Please submit requests to become subscribers
to Listserver@encephalitis.org, in the message please include your
name and email address. Please include other information which
might include your home town, etc. This information will not be published
but will better serve you. |
| |
| Encephalitis Mailing
List, UK Please submit requests to become subscribers
to majordomo@connect.org.uk, in the message please write: subscribe.
Also include your name and email address. |
| |
| Neurology Web-Forum |
| |
MGH
Neurology - Neurology Web-Forum --
url: http://neuro-mancer.mgh.harvard.edu/cgi-bin/Ultimate.cgi |
| |
| Hydrocephalus: |
| |
Guardians of Hydrocephalus Research Foundation, Inc. 2618 Avenue
Z, Brooklyn, NY 11235-2023
Telephone: 718-743-4473 or 800-458-8655
email: guardians1@juno.com |
| |
Hydrocephalus Foundation,
Inc, 910 Rear Broadway, Rt. 1, Saugus, MA 01906 - Support,
educational resources and networking opportunities to patients and families
affected by hydrocephalus. Also promotes related research and facilitates
the training of healthcare professionals to improve patient outcome. Telephone:
781-942-1161-
email: HyFII@netscape.netproviding
url: http://www.hydrocephalus.org/ |
| |
| National Hydrocephalus Foundation
-- 12424 Centralia Rd, Lakewood CA 90715-1623 url: http://nhfonline.org/ |
| |
Hydrocephalus Assoc., 870 Market St. Ste 955, San Francisco,
CA 94102, Telephone: 415-732-7040
url: http://www.hydroassoc.org
chat online: http://neurosurgery.mgh.harvard.edu/ha
email: hydroassoc@aol.com |
| |
| Hydrocephalus Support Group PO Box 4236, Chesterfield, Missouri
63006-,
Telephone: 4236 314-532-8228 |
| |
| Meningitis: |
| |
Meningitis Foundation of Ameica
-- Provides information on both Meningitis and Encephalitis -- 7155 Shadeland
Station Ste 190, Indianapolis, Indiana 46256-3922 - information and support
Telephone:
800-668-1129, 317-595-6383;
url: http://www.musa.org |
| |
Meningitis Research of Canada
-- grassroots initiative born
from a mother's tragic loss of her son, Michael Longo
PO Box 28015 R.P.O., Parkdale, Waterloo, Ontario N2L 6J8;
Telephone: 519 746-8306; Toll-free: 800-643-1303
email - fund@meningitis.ca
url: http://www.meningitis.ca/ |
| |
| Meningitis Trust UK --
Meningitis Related Information and Education for Health Professionals--
url:
http://www.inmed.co.uk/ |
brain@headinjury.com
