|
Subject: Web Site Feedback
Q: Your
web site takes a long time to come up. It is not user friendly.
thanks
Dear Liz;
A: Thank you for contacting
Brain Injury Resource Center and for your comments concerning our web site.
The site is slow to load for two reasons, first of all the site is
huge, and that I believe is a good thing. Secondly, your browser is probably
slow, dial-up vs DSL or broadband. What can I say.
I would love nothing more than to upgrade the site yet again,
however, people who use the site do not seem to feel the need to support
it with donations. We ask only that you give what you can afford.
If everyone who uses the site would donate a little, we would be able to
maintain it and upgrade it so that is more user friendly. However,
under the circumstances we do what we can to give you the best and the
latest information available with the meager resources at hand,.
Again, thank you for contacting Brain Injury Resource
Center, I hope you have been helped by the information provided.
Subject:
Headaches and Head pain...
Q: I had a severe skull fracture and brain
concussion in 1969. Closed head injury. I was not expected
to live, but I did. (I had one of those out of body experiences
where I was in the light. I was asked if I was ready to go on to
what had been prepared for me---quite awesome and powerful experience.
I said I was not ready to go yet and was returned In any case,
I recovered 100% and was actually Most Valuable Trackman on my high school
track team about 3 years later.
I used to have very sharp pains about 3-4 times
a year in the area of the injury, above my right temple. About 3 years
ago, those pains began increasing. Over the course of maybe 1 year,
they got to where I would have 3-4 a day. Sometimes I would have
them just 2 minutes apart. These pains would strike hard, last
5-6 seconds and fade in about 1 minute.
Then, I had a very scary "event" where I became
totally disoriented and lost control. I didn't know where I was,
what day it was or anything. This lasted several minutes.
I was only 6 houses from my home at the time! I was in my car at
the time. After that, my ordinarily outgoing personality vanished
and I became quiet and timid. Everyone around me knew something was wrong.
My doctor was not helpful. Now I have been
out of work for 7 weeks suffering from extreme fatigue. A psychologist
is trying to help me, I have also just started seeing a psychiatrist. I
am concerned because I am a caretaker for my wife who is disabled and need
to know if anyone has answers. Did I have a "mini-stroke" or
something?
Is is related to my injury? By the way, I never have
had any medical evaluation of my brain since I recovered from the accident
in 1969. Would appreciate any help! thanks, RSR.
A: Headaches and Head pain...
Dear RSR; I am sorry to learn of the unfortunate circumstances
regarding your 1969 head injury. With the exception of
your alarming, head pains, you seem to have made a remarkable recovery,
congratulations.
I can relate to your feelings of apprehension
concerning those electric like head pains. I too, suffered similar
head pains for a number of years following my 1982 head injury. Mine
were, sudden, swift and brain numbing. They would strike without
warning and stop me in my tracks. And, much like a lightening storm,
they would end as suddenly as the had begun. Afterwards, following a brief
recovery period, I was able to resume my previous activities.
Mine, however, unlike yours, have grown less intense
and less frequent over the years. Could it be that your apprehension contributes
to their persistence? Considering, that you have received a "clean"
bill of health, it would seem to me that there might be an emotion factor
associated with them. I am sure that the stress of your wife's disability
also plays a role in your head pains.
For information concerning stroke symptoms I would
refer you to the Stroke,
Aneurysm, and Brain Attack page on the Head
Injury Hotline web site at http://www.headinjury.com/linkstroke.htm.
I would also urge you to check out the resources on the Epilepsy
page on our web site, http://www.headinjury.com/linksepil.htm.
Additionally, I would suggest investigating deep
relaxation training and bio-feedback. Brain injury takes a heavy
toll on those with such injuries as well as those who act as caregivers
for friends and loved ones. See our Support group page for Caregiver
Resources . Sincerely, Constance Miller, MA
Subject: Friend was drinking before being knocked
out...
Q: John writes:
I have a friend who was in a car accident and was knocked out. He is 18
years old, has glasses and they wrecked on the 18th of July at 5:30 in
the morning. He was drinking. The right side of his head is a little mushy,
but he didn't go to the emergency room. He said the other night he was
watching TV and suddenly he couldn't see anything, for a half an hour or
so. Then earlier today he thought something blue was pink. He hasn't eaten
anything for awhile, but he ate today and he felt like he was going to
puke. Then he said he can't sleep. What is wrong with him, I am really
concerned? Thanks
A: Friend was drinking before being
knocked out...
Dear Erin; Get your friend to the emergency room
of a trauma center immediately, his life might be in danger. Refer to the
TBI
911 , http://www.headinjury.com/emergency.htm,
page on headinjury.com for guidelines concerning mild head injury also
known as concussion. Scientists now believe that brain damage can
be caused by a head injury even when there has been no loss of consciousness.
Sincerely yours, Constance Miller, MA
Q: "Our family does not know how to grow..."
Holly writes: My 19 year
old daughter acquired a Mild closed head injury in 1995. Our family does
not know how to grow with this type of injury as behavior is quite hostile
at times, and self esteem is so low. I fear she will be denied success
unless she is able to accept and understand how her concentration and memory
"doesn't work" nor does her ability to read. Our community literally has
no resources for support; denial and lack of understanding prevails. I
am looking for affordable assistance for learning & support. Please
advise. Thank you.
A: "Our family does not know how to grow..."
Dear Holly; Thank you for visiting the Head Injury Hotline
web site. I am sorry to learn of the unfortunate circumstances concerning
your daughter's head injury. It sounds as though she is suffering
from a classic case of Post Concussion Syndrome. Head injury is one
of those disorders that frequently causes long term impairments such as
the type described in your e-mail.
Denial
is perhaps the most difficult obstacle on the road to recovery. The
shame that results from such impairments prevents acknowledgment of, and
acceptances of the changed self. Without self knowledge
one is doomed to mere shadow existence. Hiding behind a wall of ignorance
and denial is the first line of defense against things that threaten or
frighten us. But, sooner or later we have to face the music.
In the case of brain damage, the longer the delay between the injury and
rehabilitation the more difficult the problems are to treat.
Each year 5 million persons in the U.S. suffer
head injuries Of that number 2 million suffer brain injuries many
of which result in permanent impairments. Many such injuries do not
even require a stay in the hospital, yet they result in impairments so
profound that lives are forever changed. For more information of brain
injuries see our Brain
Injury Types
Often the effects of head injuries are not immediately
apparent. Many months may go by before such changes become apparent.
For many who sustain head injuries the effects last for a few days or weeks.
For many others the problems last a lifetime.
Problems such as memory loss, impaired concentration,
attention disorders, mood swings, heightened arousal, personality problems,
fatigue, and diminished IQ, etc., are symptomatic a neurological disorder
that is caused by brain injury due to head injury. It is known as
Post Concussion Syndrome, PCS.
The definitive test of PCS is a battery of test known
as a neuropsychological assessment. Typically, a "neuropsych" will
contain, among other things, a standard IQ test as well as measurements
of high level mental functioning such as memory, concentration, attention,
mood, execution, and initiation. Assessments of test scores are compared
to those of individuals with similar backgrounds (demographics) who do
not have a history of head injury. Test performance is judged against past
accomplishments as well as other influences in the personal history.
Neurological rehabilitation programs are designed
to treat such conditions. Go to the Rehab
Facilities , page locate a center near you. Additionally,
visit the Rehab Finder
, and the Rehab
Checklist pages for additional guidelines.
Often, psychological counseling is necessary
to deal with the many, chronic impairments that follow head injury. Young
adults tend to have an especially difficult adjustment to head injury losses.
Their issues of identity and displacement take on greater proportions due
to the resentments that they might feel due to their youth and the loss
of independence that results from brain injury. I believe that it would
be a good idea for your daughter to treat with someone who understands
such issues.
Initially, I was very reluctant to seek "therapy"
for my head injury problems. Fortunately, I found an excellent therapist,
in fact, he works with Olympic and world class athletes. Many of
his clients have sustained head injuries others simply want to sharpen
their performance skills.
Actually, impaired performance is at the heart of
head injury deficits. Consequently, it makes good sense to treat with a
professional who understands the requirements of performance and competition.
The snob appeal associated with the credentials of my therapist transformed
"therapy" from a mark of shame to a badge of honor.
Typically, friends and family of a brain injury survivors,
have their own issues that result from the intrusion
of such impairments on the family culture. Frequently such issues
get overlooked in the rush to attend to the injured one. Unfortunately,
this is one of those instances wherein such issues do not simply go away.
Unless they are confronted and dealt with they manage to undermine the
family unit. Such issues might include grief and loss, resentment
and anger to name a few.
See our Support group page for Caregiver
Resources .
Additionally, I would advise you to look for a head
injury clubhouse for your daughter. It is like a mental health day
treatment program for head injury survivors. They offer peer counseling,
job banks, and job coaching. I attempted to locate one on the web
without success. The Jodi House in Santa Barbara, CA is one such model
program. Head injury clubhouses are new and therefore, hard to find.
I will continue my search for them, and will post that info on the Support
Group page on headinjury.com
Additionally, you should consider the purchase
of a copy of our head injury survival guide entitled From
The Ashes. It was written by me and another woman who suffered
a head injury. We wrote it to fill the gap in patient information concerning
this very troubling and poorly understood condition. It is available from
Head Injury Hotline via mail or phone order, credit cards accepted.
The price of From The Ashes is $25.00 which includes shipping
and handling, 206-621-8558.
You will find From The Ashes to be comprehensive
and highly readable. It address many of the most troubling aspects of
head injury. From The Ashes approaches head injury from the perspective
of the patient/survivor. Additionally, it addresses many of the concerns
of family and friends of those with head injury. It could be that From
The Ashes is available at your local library. If they have don't
have it ask them to add it to their collection. Sincerely, Constance
Miller, MA
Subject: How Long Will This Last
Q: Chris writes: I was
struck on the back of the head at work by a box that fell from approx 3
feet, I saw a flash and hit the ground, not unconscious, but in a fog.
My forehead had this dull ache on and off, how long will this last, I had
the mishap. Thank you.
A: How Long Will This Last
Dear Chris; As with any injury you can expect to feel out
of sorts for some time afterwards. Most people recover from such injuries
within a few weeks, in others symptoms last for up to a year. In
other cases, such difficulties become chronic and result in ongoing problems.
With head injuries there is no way of knowing how long the problems
will continue. The best thing that you can do is get plenty of rest
and stay in touch with your doctor. Use our Daily
Journal to keep track of your problems and your improvements.
Most such problems resolve spontaneously within (3)
three months. The next milepost is six months. If they haven't resolved
by nine months you should feel concerned, and you should consider special
testing called a neuropsychological battery. If they are still around after
a year, it's likely that they will become permanent. The TBI
Checklist , http://www.headinjury.com/checktbi.htm,
page on headinjury.com will help you track and monitor symptoms
of mild traumatic brain injury. Use it once a week to track and measure
your symptoms so that you can discuss them with your doctors. Sincerely,
Constance Miller
Subject: Airbag injuries
Q: Radek wrote: Excuse
me please, I am looking for information about intracranial injuries during
car accidents with use of airbag. Did you see any fractures of skull or
some similar (RTG, CT, SONO or MRI diagnostic able) injuries?? Do you know,
where can I see (on the internet too) information about this?? Do you mean,
that airbag protect head against these injuries?? Thank you, Radek
P.S.: Apologize me bad english, but I just learning it.
A: Airbag injuries
Dear Radek; Yes, airbag deployment
can cause intracranial injuries. According to a 1997 report issued by the
National Highway Traffic Safety Administration airbags have been blamed
for the deaths of 54 children and 20 adults in the U.S. Websites
that you can visit for more information concerning such injuries include:
Advocates for Highway and Auto Safety (AHAS) http://www.saferoads.org/
Insurance Institute for Highway Safety (IIHS) http://www.itsa.org/
U.S. Bureau of Transportation Statistics (BTS0 http://www.bts.gov
National Highway Traffic Safety Administration (NHTSA) http://nhtsa.dot.gov
Centers for Disease Control and Prevention (CDC) http:www.cdc.gov |
|
Sincerely yours, Constance Miller, MA
Subject: At my wits end...
Q: Teresa writes: Hello,
I'm writing today to try and find some help for my brother-in-law, he had
a head injury in August 1997, when a tire he was replacing blew up in his
face. Following several weeks in the hospital he was to be sent to a rehab
home but his wife put him in a nursing home instead. Eighteen months later
we took him home with us. Now, 6 months later, we realize what a mistake
we made. We now know that we can't give him the help and the time he needs.
We have tried a lot of different things to
get him active but he just doesn't seem to care about anything. We thought
having his children here would get him going and involved. We thought that
having the kids around would make him happy and motivate him try and do
things for himself, wrong again. Much to our surprise and disappointment
he avoids the kids. If they are in one room he goes to another room.
It makes me sad and mad that he is doing this
because he is able to do things. He can still walk, talk, feed himself.
He can still remember things from years ago and he can do anything he wants,
but being with his kids is the thing he doesn't want to do. He doesn't
do anything but sit around and watch TV and if you try to get him to do
anything he gets mad. He goes the bathroom on himself because he doesn't
want to get up.
If anyone out there can help me please do,
I don't want to put him back in a nursing home again because we love him.
I know and he knows that he can start living a normal life again we just
don't know where to go to get the help.
PS: I tried the nursing homes they will not take him because he is able
to do and a retirement home rejected him because he wets and poops on himself,
and rehab will not help because the injury is too old they all said he
was some where in the middle. So if that is true where can I find the help
for people struck in the middle
A: At my wits end...
Dear Teresa: I am sorry to learn of the unfortunate circumstances
concerning your brother in-law's head injury. It sounds as though he is
suffering from a classic case of Post
Concussion Syndrome. Head injury is one of those disorders that
frequently causes long term impairments such as the type you described
in your e-mail.
Problems such as memory loss, (especially,
short-term memory loss) impaired concentration, attention disorders, mood
swings, heightened arousal, personality disorders, fatigue, and diminished
IQ, etc. Other impairments include what's called executive functioning,
that has to do with executing or doing things. Other troublesome impairments
include diminished initiation. Initiation has to do with starting things.
Head injury compromises the person's
ability to respond to the emotional needs of others. It also puts them
out of touch with their own emotions, and causes a condition known as flattened
affect. Head injury can cause a person to become more sensitive to light
and sound. The sound of children playing might over stimulate him and cause
him to feel irritable. These are but a few of the disorders that are symptomatic
a neurological disorders caused by brain injury due to head injury. It
is known as Post Concussion Syndrome, PCS. see our
TBI
Checklist
Another, troublesome disorder that results
from brain injury is seizure disorder, check
out the resources on the Epilepsy
page on our web site, http://www.headinjury.com/linksepil.htm. Medical
science is just now beginning to understand seizure disorders, but they
do now understand that seizures commonly follow brain injury. Certain types
of seizures, do cause incontinence, or as you put it causes the person
to go to "the bathroom on himself." Does he wear adult diapers?
Typically, friends and family of a brain
injury survivors, find themselves facing their own unpleasant, issues that
grow out of the impact of such impairments on the family. Frequently such
issues get overlooked in the rush to attend to the injured one. Unfortunately,
this is one of those instances wherein such issues do not simply go away.
Unless they are confronted and dealt with they manage to undermine the
family unit. Such issues might include grief and loss, resentment and anger
to name a few.
I'm at a lost as to where to find help
for some one stuck in the middle. Have you considered private psychotherapy,
he could be depressed. If he has insurance coverage you should look for
someone with special training in brain injury, go to the Rehab
Facilities and the rehab finder pages on headinjury.com for resources
and guidelines for selecting a doctor. Sincerely, Constance Miller, MA
Subject: Uncontrollable shaking...
Q: Concerned Mother
writes: Hello. My question is my son fell off his bike when he
was around 10 years old. He landed on cement and lost consciousness for
a few minutes and bleed a lot. He ended up in the hospital in the intensive
care for 3 to 5 days because he fractured his skull but also was
bleeding inside the brain. Since that fall he has gotten the shakes. And
as time goes on the shakes are more noticeable. The shakes are in his hands.
He cannot keep them steady. We did all the follow ups required at
the time and supposedly he was healing alight. Could these shakes come
from that injury? If so what in the brain could be causing it? Is there
help for him? Can the shakes be controlled or stopped? Please let me know
so that I can pass it on to him to get help.
Concerned Mother
A: Uncontrollable shaking...
Dear Concerned Mother; I'm not a doctor, but it sounds to me
like he might be suffering from a type of seizure disorder. And,
yes it could have been caused by his head injury. In fact, there
is a good chance that it was caused by his head injury.
For more information on this poorly understood
disorder go to the Epilepsy
page on the headinjury.com web site, http://www.headinjury.com/linksepil.htm.
Sincerely yours, Constance Miller, MA
Subject: Mother-in-law's head injury,,,
Q: Hello, I'm hoping you can help or perhaps
point me in the right direction for resources. My in-laws were involved
in a serious car accident about 7 weeks ago. My mother-in-law sustained
many injuries (broken ribs, punctured and collapsed lung, severed liver,
crushed pelvis, internal bleeding from arteries in legs and pelvis and
a head injury).
She was flown from the scene to a trauma center where
she stayed a little over 4 weeks. Upon arrival, doctors were most
concerned about the internal bleeding. She had been knocked unconscious
during the accident, but had regained consciousness at the hospital when
she first arrived. She was x-rayed, and cat scanned, etc. and was
her severed arteries were repaired. The next morning, she awoke and
was looking around and seemed to know everyone who visited her.
While on the respirator, she seemed very alert, even
writing notes, etc. She had much difficulty breathing without the
aid of the respirator. She was taken off and put back on the respirator
3 different times and final received a tracheotomy. Just after the
tracheotomy, she was very alert and moved from intensive care to a rehabilitation
center near by.
During her stay in the trauma center we were told
that all of what she was experiencing was normal for head injury -- that
the swelling and initial bleeding of the brain was normal for the accident
she had and all in all, the doctors didn't seem concerned with the head
injury -- but more concerned with her lungs and ability to breathe on her
own.
At the rehabilitation center, she has began therapy
to allow her to stand, walk about the room with a walker, make the bed,
lift light hand weights, etc. She has been in the rehabilitation
center for approximately 3 weeks now. She received a smaller trachea
tube last week and is now able to talk.
In the beginning she seemed like her old self --
same personality, reactions, expressions, moods, etc. However, over
the past week she seems progressively worse in her behaviors -- her personality
is extremely bubbly at times (not like herself) and at other times very
lethargic.
The doctors said she had some short term memory damage,
but in the beginning she could tell you every therapy session she had gone
to that day, who visited, special events, etc. Less than a week later,
she has trouble remembering her daughter visiting just an hour prior.
She is extremely moody with her husband has been
by her bedside for 7 weeks straight from 7 am-12pm daily. She has much
difficulty getting through an entire thought without losing her train of
thought or changing subjects.
She began having anxiety attacks several days ago
and the doctors prescribed medication for the anxiety. This seems
to be when her moods began changing more and more.
Could the drugs alter her ability this way?
Is this normal for patients with head injury to seem just like normal for
almost 2 months and then experience these changes? Are these changes
temporary? Permanent?
After viewing several resources on the web, I question
whether she was put into the rehab to help her walk again because of the
injuries with the pelvis or rehabilitation with the head injury?
My husband and I have been very involved, but I'm
wondering if there is something that is being kept from us and I want him
to be able to deal with this crisis effectively.
Any help/assistance/answers you could provide would
be most appreciated. Thank you! DSD
A: Mother-in-law's head injury
Dear DSD; I am sorry to learn of the unfortunate circumstances
concerning your mothers head injury. It sounds as though her recovery
progressing normally. In fact, it is not uncommon to notice progressive
deterioration of cognitive functioning (i.e., thinking & memory),
and emotional stability during the first few weeks or months after serious
head trauma. A recent study showed that brain cell death continues
for weeks following brain injury.
I will address a few of your other concerns here:
1)
You're right, medication and anesthesia could adversely affect her mood
and behavior. Mood altering medications might need to be adjusted so that
a good match might be obtained, speak with her doctor in this regard. 2)
Doctors have an obligation to first treat medical conditions that might
compromise life support functions, such as breathing and internal bleeding.
Your mother's cognitive functioning, while serious, seems to have been
less serious than the internal bleeding, and the breathing problems. 3)
Rehabilitation of her hip injury would take precedence over her post concussion
syndrome impairments (cognition, or thinking, and emotions).
In fact a report by the National Institutes
of Health showed that cognitive rehab might be counterproductive when administered
too soon after brain injury. (To print a free copy of the NIH Brain
Injury Rehab Statement click on the following link: NIH,
TBI Rehab Consensus Conference - http://consensus.nih.gov
Often the effects of head injuries are not immediately
apparent. Many months may go by before such changes become apparent.
For many who sustain head injuries the effects last for a few days or weeks.
For many others the impairments last a life time and compromise quality
of life.
Problems such as memory loss, impaired concentration,
attention disorders, mood swings, heightened arousal, personality disorders,
irritability, fatigue, and diminished IQ, etc., are symptomatic of such
neuropsychological disorders caused by brain injury due to head injury.
The condition is known as Post Concussion Syndrome, PCS.
The definitive test of PCS is a battery of test known
as a neuropsychological assessment. Typically, a "neuropsych" will
encompass, among other things, a standard IQ test as well as measurements
of high level mental functioning such as memory, concentration, attention,
mood, execution, and initiation. Assessments of test scores are compared
to those of individuals with similar backgrounds (demographics) who do
not have a history of head injury. Test performance is judged against past
accomplishments as well as other influences in the personal history.
Neurological rehabilitation programs are designed
to treat such conditions. Often, psychological counseling is needed to
deal with the many, chronic impairments that follow head injury. Older
adults tend to have special difficulty getting doctors to take their complaints
seriously. Frequently, doctors will tell their older patients that
their are problems are due to aging instead of head injury. This
attitude is terribly unfair to older adults who were active and vital
before their injuries.
It could be that your mothers impairments will resolve
spontaneously after a few months. However, if they persist beyond
six months, she should seek a neuropsych exam. A neuropsych
will show impairments caused by head injury, and it will be instrumental
in resolving her injury claim. A Neuropsych exam is different from
a neurological exam and equally vital.
Typically, friends and family of a brain injury survivors,
develop their own issues that result from the impact
of such impairments on the family. Frequently such issues get overlooked
in the rush to attend to the injured one. Unfortunately, this is
one of those instances wherein such issues do not simply go away.
Unless they are confronted and dealt with they tend
to undermine the family unit. Such issues might include grief
and loss, resentment and anger to name a few. Visit our Support
Groups page for family, and caregiver resources,http://www.headinjury.com/linktbisup.htm.
Sincerely yours, Constance Miller, MA
Subject: Teen Head Injury Saturday,
Q: BH wrote I'm
16 years old. On December 3, 1997, while walking to school, I was
hit by a pickup truck. The man ran a 4-way stop while I was crossing
the street. He couldn't see because he didn't scrape the frost off
of his windows. I suffered a TBI. I had a severe concussion,
tearing and bleeding of my brain tissue. I had a subdural hematoma and
a fractured skull. It's been nearly two years since my accident,
but everyday I suffer and am in desperate need of help. I used to
be at the top of my class, full honors student, but now I have trouble
making it through a day of school. I have headaches constantly.
Today, I think I've had the worst headache since about a month after the
accident. It was so bad my vision got blurry. I'm on tons of
medicines, and I was even hospitalized for DHE treatment to see if that
would help, and it didn't. I hate noise, I'm afraid to be alone,
and I feel like I'm all alone. My mom has been a tremendous support,
and has done more than I could possibly have asked for, but we're both
really tired of struggling. If you could do anything to help us,
I'd be ever so grateful. Thank you, BH
A: Teen head injury...
Dear BH; Thank you for contacting Head
Injury Hotline concerning your unfortunate head injury. To
suffer such a devastating injury at such a tender age is a terrible cross
to bear. Clearly, you've been through a lot, my heart goes out to
you, and your family.
Your request for help was more general than specific,
therefore, my response will address general issues concerning TBI as they
relate to your situation, I hope it helps. You are welcome to write
again should you have additional questions.
The terrible wreckage caused by TBI is so oppressive
that only the strong among us survive. And, you my dear, sound like
a survivor.
The good news is that much of what is loss to Traumatic
Brain Injury, TBI, can be recovered. Unfortunately, the process of TBI
recovery is lifelong. It sounds to me as though you are suffering
from a classic case of Post Concussion Syndrome (PCS). PCS, as you
might know is the natural consequence of TBI. See our PCS
FAQ page, http://www.headinjury.com/faqpcs.htm
.
When you are diagnosed with PCS it means that you
have been saddled with an unreliable memory,
chronic fatigue, and unpredictable mood swings. TBI can cause you to become
hypersensitive to light, sound, and stimulus of all types. It can
interfere with your biological cycles, such a sleep, appetite, respiration,
digestion, etc. See our TBI
Checklist. http://www.headinjury.com/linksha.htm
It means that problem
solving , and decision
making , http://www.headinjury.com/problemdef.htm
, become more difficult. It means that doing things and understanding
things takes more time and effort than before your TBI. It means
that your reaction time will be slower, you will become more excitable,
and your sense of knowing will be different, alien even. It means
that organizing and expressing your thoughts will be more difficult, see
our Essential Skills
page, http://www.headinjury.com/selftest.htm
.
It means that understanding and interpreting subtle
clues, body language, and facial expressions will be more difficult. It
means that self regulation and self appreciation will diminished.
It means that judgment and discrimination will be impaired. Bone
up on body language, and critical thinking skills.
All of this means that maintaining an appearance
of reasonable normalcy requires extra effort and vigilance which creates
a chronic fatiguing effect which means that you will need frequent rest
breaks and more quiet time. To ignore this requirement means that
you will be continually bouncing off the walls, and offending, and alienating
everyone in the immediate vicinity. See our Wellness
Journal , http://www.headinjury.com/wellness.html
Your headaches could be a symptom of your need
for more rest. They could also indicate the presence of a TBI related
vision disorder. Be careful to distinguish between headaches and head pains.
Additionally, check out the resources on our headache
page, http://www.headinjury.com/linksha.htm.
Also visit the sites on our vision
disorders page, http://www.headinjury.com/vision.htm
as vision changes are common after TBI.
Living with TBI means that a lifetime of learning
and personal growth goes out the window. It means that you must learn
everything
all over again. You should know that your learning style might have
changed too. It also means that you have to grow up all over
again. The second time around isn't any easier, but you can get through
it in a lot less time. The best part about it is that you have a
lot more say in it. See our When
I Grow Up page, http://www.headinjury.com/growup.htm
.
TBI means that you are no longer the person that
you used to be. This means that the old self is lost, a victim of
the destruction of TBI, see our Lost
Self page, http://www.headinjury.com.
Surviving TBI means that, like the mythological Phoenix, you must
reinvent
your self from the ashes of your own destruction, see our
Found
Self page,
http://www.headinjury.com/foundself.htm.
It means that you must embrace and love this new self, warts and all.
It means that you must continually reform and refine the new self as you
progress through life's many phases, and challenges, see Essential
Skill, http://www.headinjury.com/selftest.htm
Restoring quality of life after TBI means that you
must learn to work
smart, http://www.headinjury.com/actionplan.htm
conserve energy, become highly focused and deliberate in all things.
Doing so means that you must learn to live in the moment, as distinguished
from living for the moment. One is very self conscious and thoughtful,
the other is self centered and reckless.
Living well in spite of TBI requires that you become
intimate with it as it affects you and your family. And, then you must
create
a plan , see our Goal
Setting page, http://www.headinjury.com/goalset.htm
, that addresses your needs and those of your family. It means that you
must face and deal with the deeply painful emotions on all sides, see our
Anger
Inventory, http://www.headinjury.com/anger.htm
.
Don't overlook feelings of guilt, resentment and denial
, http://www.headinjury.com/denial.htm , that
afflict family and loved ones.
Living well despite TBI requires you to reaffirm
your values and priorities It means that you must become more skillful,
http://www.headinjury.com/assertquiz.htm
, and tactful.,
http://www.headinjury.com/asothersee.htm
It also means that you must become your own advocate,
http://www.headinjury.com/advocacy.htm
, It also means that you must make a special effort to become sensitive
to the needs of your family and loved ones, see our Pop
Quiz , http://www.headinjury.com/popquiz.htm
.
A diagnosis of TBI means that learning new information
is very difficult. It also means that relearning old information
is easier than learning new information. Bottom line, learning becomes
more difficult after TBI. It also means that you become more distractible,
and your ability to attend and concentrate have been diminished.
TBI also means that you will have greater difficulty filtering stimulus
in your environment.
This along with all of the above means that school
becomes more of a torture chamber for students with TBI than it is
for those without such injuries. Fortunately, the law understands
such special needs and requires schools to provide reasonable and necessary
accommodations for students with special needs, see our Little
Red Schoolhouse page, http://www.headinjury.com/school.htm
.
Understanding the effects of TBI in your life requires
that you make honest appraisals of who you are and what you hope to achieve
within the context of your situation.
You did not make any mention of how your injury
claim is going. Several pages on our web site addresses this very
critical and highly sensitive issue. Feel free to have your parents
call me should they have questions in this regard.
Again, thank you for contacting Head Injury
Hotline, I trust you have been helped by the information provided.
Sincerely,
Constance Miller, MA |