Copyright
© 1998 Head Injury Hotline
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Family
Resources
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Feedback
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The resources and services on this page are designed to help you understand
a variety of issues surrounding brain injury. It is broken down into areas
of life. Each section addresses specific issues and is followed by links
to additional information and resources.
Tips for
living with brain injury
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Avoid high stress activities several hours before bedtime.
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Allow time for a gradual wake up in the morning
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Analyze and accommodate your new learning style.
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The brain is easily fatigued after brain injury.
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Build rest breaks into daily activities
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Create a graduated program of mental and physical exercises
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Adjust your expectations.
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Be patient
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Slight changes in daily routines can be disorienting
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Recovery from brain injury is typically a life-long process
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The up and down cycles of energy and fatigue are frustrating and confusing.
Don't hesitate to
call us with additional questions and concerns at 206-621-8558
Click
here to go to Family & Child Resources below
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If you've been helped by the information on this
site help us to keep it here for you
Donate |
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Caregiver
& Family Resources
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Disclaimer: Please be advised that
Brain Injury Resource Center is not responsible
for the overall content of external sites. The information and resources
on the Brain Injury Resource Center
web site is for educational purposes only. The information and/or any links
on the
Brain Injury Resource Center
web site should not be used for diagnosing or treating a health
problem or a disease. You should not act on, nor rely upon any information
on these pages without consulting your health care provider. |
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Addiction
Resources -- http://www.headinjury.com/resources.htm#addiction |
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Couples Therapy with Traumatized
Partners - American Association Of Marriage And Family Therapists,
Sue Johnson, PhD -- "Present relationships can be a vital part of the healing
environment for trauma survivors or they can be part of the problem. .
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url: http://www.aamft.org/ |
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Family Caregiver Alliance--
Offers online information and support to families of persons with traumatic
brain injury. url: http://www.caregiver.org |
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Familydoctor.org -- Sponsored
by the American Academy of Pediatrics. Offers a wide variety of information
for parents concerning their children's health and well-being; covering
topics such as immunizations, sleep problems, newborn care, and television.
url:
http://familydoctor.org/ |
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Family Friendly Fun
& Special Needs -- Resources offers access to mind, body and
spirit- enriching information that enhances the quality and enjoyment of
family life with special needs.
url: http://www.family-friendly-fun.com |
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Family Violence Prevention Fund
(FVPF) -- works to end domestic violence and help women and children
whose lives are devastated by abuse, because every person has the right
to live in a home free of violence. url: http://www.fvpf.org/ |
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Gorp's Gift -
4324 E. McDonald Dr., Paradise Valley, AZ 85253 - Created in 1996
by Sherri Chessen, a former Romper Room teacher on TV, writer and mother
of six and by artist Dale Duncan Johnson, a graduate of the Art Center
of Design in California, because of their concern about violence
that involves children. Telephone: 602-952-2774; Fax: 602-954-2007
- email: gorp2@earthlink.net
url:http://www.thegorp.com/ |
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GriefNet -- http://www.griefnet.org |
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How to Make Insurance Companies Pay Your Claims
and What to Do If They Don't - by William M. Shernoff, Ralph
Nader, Ruth Chew -- Step-by-step guidance in making a claim and collecting
from the insurance companies that refuse to pay legitimate claims. |
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National Domestic Violence Hotline
-- (800) 799-SAFE (799-7233) to find out about domestic violence shelters
and programs in your area. url: http://www.usdoj.gov/vawo/newhotline.htm |
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National Fathers Network
-- Provides support and resources to fathers and families of children with
developmental disabilities and chronic illness, and the professionals who
serve them. The NFN develops support programs; produces curriculum and
trainings for health care providers and educators, and a wealth of other
innovative resources. url: http://www.fathersnetwork.org |
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Parenting with a Disability
-- Messageboard where parents who have the disability can meet others
and share ideas and experiences. This bulletin board is open for topics
about how disabled parents manage at home or at work. url: http://www.parentsplace.com/ |
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Pediatric
Emergency Medicine Journal - Jay D. Fisher MD FAAP, Editor - Pediatric
Emergency Services, University Medical Center, Las Vegas, NV
url: http://www.pediatric-emergency.com/headtrauma.htm |
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National Coalition for Parental
Involvement in Education -- Provides a catalog of resources available
from all its member organizations. -- url: http://www.ncpie.org/ |
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The National Coalition of Title I/Chapter
1 Parents -- Helps economically disadvantaged parents develop
skills to enhance the quality of their children's education. Telephone:
202-547-9286 |
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The National Parent Information Network
-- cosponsored by the ERIC, Clearinghouses on Elementary and Early Childhood
Education and Urban Education, includes extensive articles on parenting,
listservs, and links to more than 100 sites on education, health and safety,
family issues and interests, and parenting and development of children
from infancy to adolescence. url: http://npin.org |
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The National PTA -- Learn
about PTA education programs and participate in a discussion group, chat
room, or bulletin board. The site also includes links to sites of many
organizations concerned with children. url: http://www.pta.org/ |
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The National Urban League
-- A useful resource for tracking programs and events related to
African-American issues. It is a rich reference area for students, parents,
teachers and history buffs.
url: http://www.nul.org |
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The
Secrets to Getting Disability Benefits -- by Sherri Silesky. How
to Survive Emotionally and Financially when Injury or Illness Threatens
your Livelihood. Nothing can be more frightening than dealing with ill
health, while at the same time, trying to figure out how you will survive
financially in your new situation. url: http://www.secrets-to-getting-disability-benefits.com/ |
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Sexuality--
Links to information and resources --url: http://www.headinjury.com/health.htm#sex |
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TBIhelp.org -- Help for
TBI Caregivers --Presented By Jamaica Hospital Medical Center --
Sponsored By United Hospital Fund. Featuring:
Live
professionally moderated chat: Mondays - 7 to 8pm (EST) -
url: http://www.TBIhelp.org/ |
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Tools for Living Workbook -
by J. Lynne Mann, Psychologist and Exe Director, BC Rehabilitation and
Recovery Centre- Instructional aids geared to helping those para-professionals
and core skills workers whom we professionals often interact with-and wish
we could assist.
url: http://www.bcrrc.com/ |
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Well Spouse Foundation
-- Information and support -- url:http://www.wellspouse.org
email:
wellspouse@aol.com |
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Also See our:Resources
Page |
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Also See our:Health
Resources Page |
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Also See our:Links
to Support Groups |
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Also See our:Links
to Federal Government Sites |
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Also See our: Noteworthy
Publications |
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Also see our:Links
to State Health Departments |
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Children's Resources
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Tips
on returning to school following head injury -- also
see our: Little Red
School House
Many
children can continue to attend school while they are in treatment.
Some
rehabilitation centers provide an “education team” who can help prepare
the class for your child’s return. School professionals working with your
child and preparing classmates can ensure that your child is treated as
normally as possible.
You
can help by educating teachers about the consequences or side effects of
brain injury
Accommodations
in school may be needed:
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Wheel
chair accessibility for classrooms and toilet facilities
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Special
bathroom privileges
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Playground
or gym exemptions or adaptations
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Opportunities
to rest
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Classroom
seating arrangements for hearing, vision or attention problems
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Homework
and test modifications because extra time may be needed
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Arrangements
to take medications during the day
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Readers,
tutors, and flexible learning and classroom environment may be needed
Meet
with your child’s teacher, before the return to school and on an ongoing
basis. |
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Advocates
for Children of New York, Inc.
-- Provides free legal advocacy for children with special educational
needs in New York City public schools.--151 W. 30th ST, 5th Fl, New York,
NY 10001
Telephone: 212-947-9779 -- email:info@advocatesforchildren.org
url:www.advocatesforchildren.org |
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ASPIRA Association, Inc.
-- Highlights its two national parent involvement programs, ASPIRA Parents
for Educational Excellence Program (APEX) and Teachers, Organizations,
and Parents for Students Program (TOPS). Each program provides a Spanish/English
curriculum that strives to empower Latino parents and families.
url: http://www.aspira.org/ |
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Federal Interagency Coordinating
Council (FICC) -- Promotes an interagency
collaborative effort to meet the needs of children with disabilities, especially
from birth through age 5. url: http://www.fed-icc.org |
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Learning
Disabilities Association of America --
Provides pamphlets, books and makes referrals to local chapters are available
-- 4156 Library Rd, Pittsburgh, PA 15234 -- Telephone: 412-341-1515
url:www.ldanatl.org |
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National Parent
Network on Disabilities -- A coalition
of parent organizations and individuals united to serve children with special
needs and their families. -- 1727 King St, Alexandria, Virginia 22314
Telephone: 703-684-6763 -- url:www.npnd.org |
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Office
of Special Education and Rehabilitative Services --
US Dept of Education - Supports programs and research to help educate
children with special needs and to provide rehabilitation for youth and
adults with disabilities. -- 330 C St SW, Switzer
Bldg, Wash, DC 20202 -- Telephone: 202-205-5465
url:www.ed.gov/offices/OSERS/ |
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Parent Training and Information Centers --
c/o
Federation for Children with Special Needs - Located in each state, PTICs
provide training and materials for parents on special needs, legal protections,
and parental rights. 95 Berkeley St, Ste 104, Boston, MA 02116 - Telephone:
617-482-2915 |
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Parent Soup -- Includes
an archive of answers to questions asked of pediatricians and child development
experts and advice about helping your children succeed in school.-- url:
http://www.parentsoup.com |
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also see our : Noteworthy
Publications Page |
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Family-Friendly
Places
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American
Library Association (ALA) - For parents and kids. Enables
preschool through elementary school children to explore rainbows, black
history, castles for kids, award-winning news reported by children for
children, the Kids Web Page Hall of Fame, to say nothing of watching dolphins,
learning lullabies, and much more. url: http://www.ala.org/parentspage/greatsites/index.html |
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The Children's Partnership
-- Free online guide, "The Parents' Guide to the Information Superhighway:
Rules and Tools for Families Online," prepared with the National PTA and
the National Urban League. The Children's Partnership, 1351 Third Street
Promenade, Ste 206, Santa Monica, CA 90401-1321; Telephone: 310-260-1220.
url:
http://www.childrenspartnership.org |
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Exploratorium --
Puzzle over optical illusions, take memory tests, and conduct experiments,
online and off. url: http://www.exploratorium.edu |
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Franklin Institute Science Museum
-- Offers online exhibits on an array of science and technology topics.
url:
http://sln.fi.edu |
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Hubble Space Telescope --
Views from Space, NASA site -- url: http://spacelink.nasa.gov. |
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Jason Project: --
An interactive exploration of the oceans, on earth and beyond. Puts the
thrill of discovery back into the classroom. url: http://www.jasonproject.org |
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Kids Computer Workshop -- 1325
W St. NW, Wash, DC, 20009 provides technology training to at-risk
youth in the District of Columbia. url: http://www.kcw.org -- email:
kcwdk@aol.com |
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Library of Congress - 101 Independence
Ave. SE, Washington, DC 20540 -- Telephone: 202-707-5000 . Materials
and exhibits on topics ranging from ballet to Jelly Roll Morton, Native
American flutes to Thomas Jefferson's pasta machine. url: http://www.loc.gov |
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NASA's Quest Project
-- Adventures in space. Watch Live from Mars, audio and video transmissions
of the Pathfinder's explorations. url: http://quest.arc.nasa.gov |
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Netparents --
Information on blocking software.url: http://www.netparents.org |
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Parents
and Children Together Online -- Read stories with your children,
let them add to the stories told around the Global Campfire, and find links
to other good family sites.
url: http://www.indiana.edu/~eric_rec/fl/pcto/menu.html |
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Parents
Guide to the Internet -- If you're new to the Internet, you might
want to use this online booklet as a tutorial to help you. It is designed
to provide basic information about how to use the computer to find information
and communicate with others. url: http://www.ed.gov/pubs/parents/internet/message.html |
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Public Broadcasting System
- Preschool children can enjoy children's programming here, elementary
school children can practice story telling, and teenagers and adults can
take telecourses.
url: http://www.pbs.org/ |
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The WELL -- Invites viewers
to make their own home page, visit the Kremlin, look inside the human heart,
take Socks' special VIP tour of the White House, and make a boat trip around
the world.
url: http://www.well.com/ |
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also see our : Resources
page |
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also see our : Health
& Government Resources |
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General
Reference Sites
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AskERIC -- A free
question-answering service provided by the Educational Resources Information
Center (ERIC), invites people to submit their questions about education,
parenting, and child development for an e-mail response within 2
working days. url: askeric@askeric.org |
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Family Education Network
-- Offers hundreds of brief articles on parenting, links to local sites,
and discussion boards that connect parents with online experts. url:
http://www.familyeducation.com |
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Internet Public Library:
Reference Center -- provides an "ask a question" feature and a teen collection,
as well as sections on reference, arts and humanities, science and technology,
and education. Sites for Parents and Parent Groups. url: http://www.ipl.org/ref |
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Karolinska Institutet
Library - Swedish resource for diseases, disorders and related topics.
Designed for consumers, health professionals and researchers. url:
http://www.mic.ki.se/Diseases/index.html |
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Magellan -- Uses
a rating scale to evaluate parenting sites. To look at the ratings or follow
the links, select Reviews, Life & Style, Family, and Parenting. url:
http://www.mckinley.com/magellan |
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My Virtual Reference Desk --
Offers dozens of links to dictionaries, encyclopedias, reference/research
materials, thesauruses, atlases, sports, entertainment, search engines
and much more.
url: http://www.refdesk.com |
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also see our : Resources
Page |
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Child
Health & Special Needs
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American Academy of Family Physicians,
AAFP -- The public access section of the website features
250 clearly written patient information handouts on health topics. url:
http://www.aafp.org |
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FamilyVillage
-- A global community on the Internet for persons with mental retardation
and other disabilities, their families, and those that provide them services
and support.
url: http://www.familyvillage.wisc.edu/ |
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KidsHealth -- Expert information
on children's health for families. Sections for kids, parents, and professionals.
url:
http://kidshealth.org/ |
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healthfinder™
-- A gateway consumer health and human services information web site
from the United States government. Healthfinder can lead you to selected
online publications, clearinghouses, toll free health information phone
numbers, databases and web sites as well as the government agencies and
not-for-profit organizations that produce reliable information for the
public. url: http://www.healthfinder.gov |
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Mi Pediatra -- A
Spanish/English language pediatric health web site from Mexico.
Includes nice handouts on topics of interest to parents of children with
congenital conditions and chronic illnesses. You will find a newsletter
written by specialists from a children's hospital and an "ask an expert"
section. Will also link you to other Spanish language sites. url:
http://www.mipediatra.com/ |
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Pedinfo -- This is a "meta-site"
which puts the huge volume of pediatric health web information into
categories. It is designed for use by pediatricians and other clinical
staff, but welcome to others interested in child health. Lists disease
specific information alphabetically, subspecialties, publications and institutions.
url: http://www.pedinfo.org/ |
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Project KNOW -- Created
to tell the truth about drugs from the perspective of kids, parents,
and experts. Drugs poison the future - sometimes all at once with sudden
death and shattered lives, and sometimes a little at a time with lost dreams
and wasted promise. The best way to avoid these problems is to "KNOW" the
truth about drugs. url: http://www.projectknow.com |
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SAFE KIDS - The National
SAFE KIDS Campaign is the first and only national organization dedicated
solely to the prevention of unintentional childhood injury-the number one
killer of children ages 14 and under. More than 260 State and Local SAFE
KIDS Coalitions in all 50 states, the District of Columbia and Puerto Rico
comprise the Campaign. url: http://www.safekids.org/ |
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Shaken Baby - http://www.dontshake.com
- National Information, Support and Referral Service on SBS Child
Abuse Prevention Center, 801-627-3399. |
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Sibshops
-- The Sibling Support Project is a friendly place for brothers and sisters
of children with special needs. Use this site to find a Sibshop support
group near where you live, join a listserv or find books and newsletters.
url:
http://www.chmc.org/departmt/sibsupp/default.htm |
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Web MD - Main page leads
to several branches of the Web MD site including the consumer site, Web
RN, Health Teacher and the member's center. url: http://www.webmd.com/ |
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brain@headinjury.com
