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Memory
Improved in TBI patients to better
than normal levels with EEG Biofeedback.
For more info see CHP-Neurotherapy.com
tley Thornton, PhD, Edison, NJ
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Hall of Heroes
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Our
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Bill Levinger, MD
Emergency Medicine
Pain
Management
and, head injury survivor
Kennawick, WA
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Hugh R. MacMahon, MD
Neurology,
Sea, WA
Medical
Advisor
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get a tax break.
Prompt,
nation
wide
pick-up
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D. Mortz Inspirational
Award est. 2002
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Rehabilitation
Facilities
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Brain
damage
is forever, get involved.
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Donate
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Heartfelt
gratitude to the Hanson Family, of Seattle,
WA.,
car donor.2003
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Create
a Memorial
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BrainInjuryResourceCenter
P.O.BOX
84151
Seattle, WA98124-5451
206-621-8558
brain@headinjury.com
http://www.headinjury.com
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This
site is maintained by: Brain
Injury Resource Center --
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A non-profit clearinghouse founded and operated by brain injury activists
since 1985.
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If you have landed on this site it is probably because you have learned
that head injury is poorly understood, and you need expert guidance to
make sense of it.
Medical science
has only just begun to unravel the mysteries of brain injury.
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More questions remain than answers.
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Therefore, it stands to reason that the general public wouldn't have a
clue as to what they are in for.
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Consequently, when it happens to you, or someone you love, you find yourself
ill-equipped to deal with the sweeping, life changes it brings.
What to do;
where do you turn for help?
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A study by the National Institutes of Health found that 85% of brain
injury patients do not receive any treatment or counseling concerning the
long term difficulties caused by brain injury.
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That same study found that the high cost of rehab services has placed them
out of reach of many who would seek help.
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A related study showed that simple interventions could provide effective
work-arounds for many of the difficulties caused by brain injury.
Urgent ! Looking for Rehab? Click
here first: Scams
You should
know that, a Justice
Department investigation found that several leading head injury
rehab facilities had taken unfair and unlawful advantage of their patients.
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This shocking situation, points to the vulnerability of patients and their
families during this difficult time.
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This regrettable situation underscores the need for consumers to be wise
and wary, and that's where we come in.
Self-determination
Thanks to our creative leadership and problem
solving WashingtonState
now has a legal definition of Traumatic Brain Injury. This means
that TBI is now officially recognized as a separate and distinct disability,
as such it has been accorded legal standing in state law.
Under the direction and vision of Constance Miller, BrainInjuryResourceCenter
initiated and lead the effort to put traumatic brain injury on the legislative
agenda. Under the skillful advocacy of Washington’s brain injury survivors
their families and friends, the Washington State Legislature passed a bill
supporting those living with the effects of traumatic brain injury.
We drafted and introduced House Bill 2055 under the sponsorship
of Rep. Dennis Flannigan. Surprisingly, a competing bill, Senate Bill 5024.
was introduced at the same time by Sen. Ken Jacobsen. After careful analysis
and comparison we concluded that the "other" bill would do little to advance
the cause of TBI.
This turn of events caused us to re-double
of efforts with legislators. We were able to convinced them to merge the
best of each bill and in the end the resulting document was the bill that
gained final approval in the House and Senate, HB 2055, would create
a Washington Traumatic Brain Injury Strategic Partnership
Advisory Council that would report to the Governor, the Legislature,
and the Secretary of the Department of Social and Health Services (DSHS).
HB2055 created a Traumatic Brain
Injury Account, funded by an additional $2 fee on all traffic infractions,
DSHS was granted authorization to spend monies from the fund on information
and services related to a public awareness campaign, support groups, or
information and referral services.
It is estimated that this fund would receive
$1.5 million every year. Such funds were to be made available to community-based
organizations through a request-for-proposal (RFP) process.
The stated legislative intent was to provide
services to meet needs of TBI survivors. The bill, HB2055 directed the
council to consider the merits of developing a statewide TBI registry.
The bill is officially named “The Tommy
Manning Act,” after a tragically injured survivor. However, to read how
the bill actually came about, click here to read "History
of HB 2055."
We really owe quite a bit to Marty Oroshiba,
Keith Nicholson John Ernest Berry, III, Eloise Holden and to the other
survivors, friends and families of TBI. It was their persistent advocacy
and passion that inspired this legislation.”
Now that this project is behind us we
are poised to launch our next big adventure. This time we hope to
avoid the legislative and bureaucratic processes all together. Building
on lessons learned we are loojing toward the private sector.
Ultimately, the intent is to change the face
of Traumatic Brain Injury, We in tend to elevate the status of TBI from
one of pity and shame to one of admiration and respect. For more information
on our next big adventure and to get involved email
us and watch this space. We are looking for partners for this exportable,
green project. 206-621-8558.
Purpose:
The
purpose of this site is to share with you lessons we learned long ago.
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Our intention is help you avoid
much of the grief and loss of brain injury, and perhaps to inspire
you to get involved.
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To achieve these goals we offer
you the benefit of our considerable knowledge and experience.
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Most importantly, we learned that
pro-active involvement, knowledge, self-awareness, and self-advocacy are
key to quality of life following brain injury.
Self-help:
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We strongly urge you to learn everything you can about brain injury
and its life-long effects.
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Learn about how it
affects you, and how to limit its impact on you.
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Set individual and family rehabilitation goals.
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Draft treatments
plans and timelines.
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Learn about your treatment,
and how it is supposed to benefit you.
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Check credentials
and track-records of professional service providers.
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Work hard to achieve your rehabilitation
goals.
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Embrace challenges, instead of giving up when thing things don't come easily.
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Take remedial and/or refresher course work in areas of your core competencies.
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Ask questions, search out information, and get answers.
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Thank those who
help you.
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Keep your Personal
Safety Net in good repair.
Healing:
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Acknowledge your losses,
give yourself time to grieve, and then pick up the pieces and move on with
your new life.
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Moreover, get to know and, learn to love your new
self.
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Re-affirm your values and priorities, and trust your instincts.
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If you do these things you will achieve your rehabilitation goals, get
the help you need, and make informed decisions.
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If you adopt and apply these practices your life will change for the better.
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Our goal is to help you
maximize your recovery.
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To achieve our goal we have placed much of what we've learned on this web
site.
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Its contents have been drawn from our personal experiences, along with
years of research and consultations with our medical
and legal advisors.
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We provide information on brain injury and the impairments caused by it,
as well as resources and support for dealing with it
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We promote self-advocacy, and self-care, centered on collaborative partnerships
with family, loved ones, and professional service providers.
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After you've been checked
medically your next stop is here.
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This is where you will find information on the brain, and how injury changes
brain functioning and behavior.
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This is where you'll find links to brain injury resources, services, and
support.
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Additionally, you will find guidelines for choosing and evaluating professional
services, as well as links to sites to check out, and/or file complaints
about doctors, lawyers, and rehab facilities.
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This is where you can assess your own situation and learn effective interventions.
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Additionally, you'll find guidelines for creating and maintaining your
personal safety net.
About
this Site:
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This site was designed
for those who want to learn about the effects of brain injury in daily
life.
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It is based on the premise that physically surviving brain injury is just
the first step in a lifelong process of adjustment and accommodation.
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Our intent is to give you the benefit of our considerable knowledge, skills
and talents.
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Our mission is to help you avoid some of the unnecessary losses and devastation
caused by the effects of brain injury.
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Meet our consultants
Our
clientele includes the:
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America Academy
of Neurology -- we assisted e development of their diagnostic and treatment
guidelines
on Concussion
in Sports
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We offer factual, authoritative information on brain injury, the impairments
caused by it and treatment
options.
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We provide self-tests, checklists, and strategies to meet the challenges
of living with brain injury.
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We empower you to know when you need help -- including self help -- and,
we enable you to find help and to make informed decisions concerning such
help.
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We bring together those seeking specialized, professional services with
those uniquely qualified to provide such services.
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We strive to advance understanding of brain injury and the impairments
that result from it.
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We encourage collaboration between consumers and professional service providers.
Additionally, we provide guidelines and checklists for selecting and monitoring
such services.
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We provide resource directories, of social services, and kindred souls
for chat and support.
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We promote prevention of brain injury.
The site is divided into several major topics
see the navigation bar on the left side of the screen. On it you will
find information to help you achieve your rehabilitation goals. Topics
include:
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Learn about the brain and how injury affects brain functioning.
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Resources, including medical and rehabilitation
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Advocacy including life skills and legal resources.
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Additionally, you can learn about us and the services we offer
There
are several ways to access the wealth of information and resources on this
site. The best way to is to click on the: Tool
Kit link or the tool kit graphic below.
Use the scroll bar on that page
to view links to additional support and resources. These highly recognizable
navigational aids can be found on each page of this site.
You can browse the site and print out pages that
appeal to you.
The
information and resources on this site are designed to enhance
your brain power, and to change your life for the better.
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It achieves that goal by providing a framework for reconstructing lives
devastated by traumatic brain injury.
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This site was designed to serve a broad audience.
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To that end it provides information and resources on brain injury for the
individual, the family and the professionals that serve them.
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It provides information and resources on brain injury from the point of
injury to its effects on daily life.
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Other information and resources help you recognize and minimize its impact
on you and your family.
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Still other resources help you select and monitor professional, as well
as social services.
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Finally, it provides resources for those seeking expert guidance
and/or self-help options.
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Over the years
we have assembled considerable resources and information concerning brain
injury that we are in the process of uploading, so bear with us.
If you don't see what you're looking for; e-mail us or give us a
call 206-621-8558.
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This site
is unmatched in its breadth and depth, and still growing. If you find that
you have been helped by the information on this site help us keep this
resource alive and well for you. Donations
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We
believe that collaboration between consumers and professional service
providers will greatly reduce the misery and waste of head injury. Additionally,
we believe, that such collaboration will lead to better treatments
and perhaps, one day, a cure. To that end we share our talents, skills,
knowledge and personal qualities to promote our goal of public empowerment.
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Although
we appreciate your comments, the large volume of e-mail sometimes makes
it impossible to reply to all messages. Go to FAQ
for answers to the most common e-mail questions
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How
you can help: To reach
our goals we need to hear from you. We want to know of your experience
of head injury. More importantly, we want to know of your experience
of our site. Tell us how well it worked for you. Additionally,
tell us, what you would add;
as well as, what you would remove. We value your feedback.
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We
strive
to be the most extensive on-line directory of brain injury services
and products. If you know of a person, organization,
agency, or firm that should be listed, please send it to us in an
e-mail.
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We
are seeking - individual
and corporate sponsors - to help underwrite both
general and targeted programs for BrainInjuryResourceCenter.
Such sponsorships would receive prominent acknowledgment on our site, 206-621-8558
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We
welcome inquiries from volunteers
with experience and skills in research,
grants writing, hypertext editing, computers, and basic organizational
management.
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What
to expect: This site is fluid, it changes almost daily. While
the basic content will remain the same; you can expect to see regular
additions, up dates, and where necessary corrections. We strive to
make your experience with us seamless and cogent. We value your questions
and feedback. We can be reached by e-mail
or telephone , 206-621-8558.
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While this
site was designed primarily for traumatic brain injury it contains information
relevant to many types of brain injuries. You'll find information on, and
/or, links to resources for various neurological disorders. Support
Groups
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The educational
and charitable programs of Brain Injury Resourcee
are made possible by the generous support of individual, and corporate
sponsors, and friends.
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There is
no charge for the use of this brain injury information, but if
you find this information useful and would like to make a contribution
to our project, click
here.
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This
site was last updated on:
12/12/12
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READ Our Disclaimer
and Privacy notice before proceeding!
Copyright
© 1998 - 2013 Brain Injury Resource Center
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